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Can anyone give me advice?
Hi I’m new to this. I’m single mum to Alexandra (you will see her in my profile pic) who is 16 years old and has spastic diplegia cerebral palsy. She walks in a walker indoors and uses wheelchair outside. I wonder if anyone can give me some advice. She had an appointment with her neurologist a few weeks ago and she copied me in on a letter to her gp where she stated she had lumbar lordosis. This has never been discussed with me at orthopaedics. Her physiotherapist pointed it out to me when she was standing the other day a curve at base of spine worse standing than sitting. Can anyone give me advice about this she’s not due to go to orthopaedics til May and I know I’m going to be worried about her til then. She’s had so many major surgeries to her hips and knees I don’t think she could take any more. Thanks so much Anne
Replies
Disability Gamechanger - 2019
Thanks for your post and it's good to meet you.
I'm not medically trained but from what I understand Lumber Lordis is that the affects can be lessened through excercise and physiotherapy. However, this will not remove the problem completely, the only way to do that may be surgery. I would advise that you wait for the orthopaedics appointment where your daughter and youself can discuss the options available. I can completely relate to how your daughter feels about the possibility of more surgery but there may be other options.
Specialist Information Officer - Cerebral Palsy
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I am surprised that Lumber Lordis has not been pickup before. It very rarely just appears and takes time to develop.
I'm always around for a chat
Specialist Information Officer - Cerebral Palsy
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