CP: Im interested in how things have changed for others and would like to share experiences & ideas

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JackyO
JackyO Online Community Member Posts: 1 Listener
edited April 2019 in Cerebral Palsy Network
Hello. Thought Id join this group because my CP has become a problem with age. Im interested in how things have changed for others and would like to share experiences and ideas 

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  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @JackyO welcome to the community! You may like to chat with our Cerebal Palsy Specialist Information Officer - @Richard_Scope, he is a lovely gent who has Cerebal Palsy too. Let us know if we can help you further :)
  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,764 Pioneering
    edited April 2019
    Welcome to the community @JackyO : ) Please feel free to join our cerebral palsy discussions.
  • emmarenshaw
    emmarenshaw Online Community Member Posts: 697 Empowering
    Hello @JackyO welcome to the community. I’m Emma one of the Community Champions. I have Cerebral Palsy as well. Lovely to meet you here,
  • Richard_Scope
    Richard_Scope Posts: 3,785 Cerebral Palsy Network
    Hi @JackyO
    Thanks for your post and another very warm welcome to the community. 
    I live with quadriplegic CP and now have much more pain in my joints than when I was younger. People living with CP can experience 'physiological burnout' due to the stresses and strains that we place on our limbs/joints when we move. 
    I will include some information on Ageing with CP and Post impairment Syndrome 
    Would love to talk further :)
  • Richard_Scope
    Richard_Scope Posts: 3,785 Cerebral Palsy Network
    edited April 2019
    We also have a thread that I find useful Things that you have found useful for managing your CP

    It's quite a large discussion.

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