Are there any support groups /forums out there for teens with cp? — Scope | Disability forum
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Are there any support groups /forums out there for teens with cp?

Juebar Member Posts: 1 Listener
edited April 2019 in Cerebral palsy
Hi I am a mum of a 13 year old girl with mild cp diplegia and scoliosis . She is currently spending lots of time off school due to pain in her back. Her friends at school have shunned her and it’s killing me to watch her be so lonely . Is there any support groups /forums out there for teens with cp? She is spending more and more time in her wheelchair now and is under a psychologist for anxiety issues .it feels as though she’s just giving up . Any advice etc would be really appreciated . 


  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @Juebar

    Good Morning it’s great to meet you today.

    We have got a “Family Section” on our site/community.

    I do hope that it is helpful for you???

    Here’s a link below for you:

    Please please let me know if you need any further help/support?? 

  • emmarenshaw
    emmarenshaw Member Posts: 711 Pioneering
    Hi @Juebar  I’m Emma one of the Community Champions. I’m going to tag in @Richard_Scope  Scope’s CP Advisor to see if he can assist you.  Welcome to the community.
  • Richard_Scope
    Richard_Scope Posts: 3,176 Scope online community team
    Hi @Juebar
    Good to meet you! Thanks, @emmarenshaw for tagging me into the conversation.

    I encountered similar issues after spending prolonged periods in the hospital due to surgeries and as we all know teenage can be a challenge at the best of times. It is a real positive that your daughter is able to speak to somebody about her feelings and using her wheelchair more is most likely an attempt to minimise the pain that she is in.

    Our friends at CP Teens offer a place to make friends and get support from other teens living with CP, also Phab is a club that I used when I was younger.

    If I can help in any other way please, let me know. I would be happy to.
    Specialist Information Officer and Cerebral Palsy Programme Lead

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