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We want to hear from you: please tell us about your experience of the online community.

Any other TPN users on here?

Toejam

Hey,

I'm a 32 year old suffering from severe crohn's since I was 16. Had major surgery to remove my whole large bowel and was giving an ileostomy. Living life with crohn's from 16 to 22 wasn't easy but I could manage a normal life, family, work and everything else... Then bam! Once I hit 22 my health my started to deteriate even more. I was then diagnosed with intestinal failure and have been on TPN for the last 10 years.

So now it's a combo of crohn's, ileostomy, TPN, anemia and everything else that comes with it.

Any other TPN users on here?

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Comments

Ami2301

Hi @Toejam welcome to the community! Our fabulous senior community Officer @Sam_Scope who has a ileostomy

Antonia_Alumni

Welcome to the community @Toejam how are you doing today? You may be interested in joining our dealing with chronic pain discussions.

Sam_Alumni

Hi @Toejam
I have ulcerative colitis and an ileostomy, I havent had experience of TPN though.
Have you seen the charity Crohns and Colitis UK? They are a great charity and they have lots of support.

Toejam

Sam_Scope said:

Hi @Toejam
I have ulcerative colitis and an ileostomy, I havent had experience of TPN though.
Have you seen the charity Crohns and Colitis UK? They are a great charity and they have lots of support.

Yeah, TPN is pretty rare. Nice to have a fellow bag buddy on here, haha. Thanks for the link.

Darkblu73

Hi @Toejam
I have Ulcerative Colitis just gone through Ileostomy surgery been diagnosed since 2019 near 5 years. Came as a shock yo me too for surgery but where I was I went into hospital and after various biological treatment nothing worked so had to go through surgery. So I am just learning stoma and living with it. Still in hospital now as we speak. I am member of Chrons and they are great help with my Ulcerative colitis.