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Effective therapy and treatment

19681989 Member Posts: 41 Connected
edited April 2019 in Autism and neurodiversity
I wonder if you could advise me .My adult son has fragile X syndrome plus autism and learning difficulties.
He sufferes with chronic  anxiety and low moods. He is currently taking quietapine 25mg.
He is having twice monthly session with the learning disabilities community team , a physcotherapy assistant .
Although the assistant has no experience working with LD.But has worked with children.
I'm at a review next week and I'm unsure what too ask for or whether this is acceptable treatment plan 



  • Ami2301
    Ami2301 Community Co-Production Group Posts: 7,948 Disability Gamechanger
    Hi @19681989 welcome to the community! You want what is best for your son, it important that you discuss your concerns at the review :)
    Disability Gamechanger - 2019
  • 19681989
    19681989 Member Posts: 41 Connected
    Thanks yes I will.
  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,781 Pioneering
    Welcome to the community @19681989 :)
    Like @Ami2301 suggested please let them know your concerns. I'll tag in @SparkleSheffieldAutismAdvisors to see if they have any suggestions.
  • 19681989
    19681989 Member Posts: 41 Connected
    Thanks very much 
  • SparkleSheffieldAutismAdvisors
    SparkleSheffieldAutismAdvisors Member Posts: 32 Pioneering
    Hi @19681989!

    Our advice would be, at the review make sure you have a clear written list of things that you'd like to ask. Lists are great! That way you won't forget to ask anything in the meeting. And feel free to make notes while people are talking to you, you can always ask more questions later on! 

    A few things you might want to consider asking could be;

    What are the long term goals for your son on this treatment plan? For example; what are the expected goals in 1 or 2 years time? And then what are the short terms goals? So what steps are being taken to make sure your son reaches his goals on this plan? 

    Do you have any concerns about his care so far? Note these down and bring them up at his review.

    Is there anything happening so far that you have any questions about, or would like more information on?

    Don't forget, your the expert in your son, feel free to ask as many questions as you need to to make sure you know what's going on is the best for your son.

    Hope this helps, any other questions, feel free to ask!
  • 19681989
    19681989 Member Posts: 41 Connected
    Hi thank you very much appreciated.
    Just another question.....
    My son lives with me full time and doesn't have other carers at the moment.
    We have tried a few and doesn't work out .
    He goes to a day service a couple afternoon a week that's all.never had respite.

    Do other people experience this.


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