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hi all

so im jo. (female hence no e). im 45 till august. i love most animals. arts and crafts. writing but not so much reading. gaming.
ok so i have a long list of factors that bought me here. ill list them and if u want to know anything about them feel free to ask.
im registered severe sight impared (used to be blind) iv limited vision close up.
congenital cataracts (removed)
nystagmus
tunnel vision
glaucoma
aphacia
highatis hernia
high blood presure
antiphospholipid syndrome
depression
disociative identity disorder
bpd
ocd
anxioty
some kind of degenerative back issue
looking to do get a diagnosis for autism
phew i think thats them all. thanks for reading.
ok so i have a long list of factors that bought me here. ill list them and if u want to know anything about them feel free to ask.
im registered severe sight impared (used to be blind) iv limited vision close up.
congenital cataracts (removed)
nystagmus
tunnel vision
glaucoma
aphacia
highatis hernia
high blood presure
antiphospholipid syndrome
depression
disociative identity disorder
bpd
ocd
anxioty
some kind of degenerative back issue
looking to do get a diagnosis for autism
phew i think thats them all. thanks for reading.
Replies
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
today im in a lot of pain. im in a hospital rehab ward after a fall 2 weeks ago that did my back in. so yeah not too much fun really lol.
thank u for the welcome.
here is a biro pen sketch of my late cat lily. she was 18 and a half years young.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
dimond painting is done by sticking round or square plastic resins on a pre printed canvas.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
ur welcome. the diamond painting is really easy. the repetitiveness is calming.
my sister is a trustee for the pet rescue charity i got my lily from. miss her dearly but i cant have pets any more as the carers wont even hover up cat hair. if i get a guide dog they will be stuffed as they cant say no to that.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
i get mine from wish as they r just as good quality but way cheaper. u do have to wait a bit for them to arrive.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
I am one of the team of community champions on the forum.
Please if I can help or advise or wish to ask anything..
If you need to any support or organisations or further information relevant to your conditions or illness.
Be happy to find out for you. Be supportive.
Please take care.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
@thespiceman thank u for the welcome.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
Hello @Ranibowjo
My Name is Connie00
I am one off the community Champion’s here at Scope. it’s really nice to meet you.
A warm Welcome to the Community
Thank you for reaching out to us. I hope you are having a good day today,
Oh my that is a lot of conditions, you are suffering with,
Sorry you are hospital, but at least you are getting some practical help and support.
I must say you are a very talented artist.
If we can be of any help or support to you please let us know.
Enjoy the rest of your day
@Ails ur welcome. will look forward to seeing wich u choose to do. im ok today. bit of pain as my back twinged but considering 2 weeks ago when they thought id fractured my spine in a few places im great so knowing that keeps me going. 😃
@emmarenshaw thank u ffor the welcome and ur comment about my art. 😃
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
Good Evening it’s great to meet you today.
I am another Community Champion here at Scope.
Please please let me know if there’s anything that I can help you with???
@steve51
im still trying to work out the best place for what i want to say. it relates to adult social care and none physical abuse. iv got a bit of time to work it out as im in hospital anyway.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
No probs it’s my Pleasure 😇😇
Yes I’m very very happy in pointing you in the right direction.
Is it just “Adult Social Care” that I can help you with???
Please please let me know how you feel??
@steve51
Good Morning!!!!!!
I have found some info for you below on “Adult Social Care”
https://www.scope.org.uk/advice-and-support/introduction-to-social-care/
Please let me know if you have any problems as there’s more to come if required????
@steve51
thanks for the link. im beyond all that iv had carers for 3 years. im suffering according to a solicitor (we cant find one to take my case on) emotional abuse. emotional abuse and neglect. and organisational abuse. by my carer agency manager and my social worker.
iv tried complaining. i got what i have now out of my original complaint. so was told go to the ombusman. they wont help cos i cant put it all in a coherant letter or chronological order as iv memory issues. they wont take a full complaint over the phone.
it just annoys me. if it were physical abuse there would be someone to step in and say no contact till a full investigation is carried out. new social worker would be put in place. but as it is nothing and the very people im complaining about r looking into the complaint. its all wrong. if u feel ur suffering any form of abuse there should be somewhere to turn who would step in. not just for physical. cos thats like saying u dont deserve or ur not going to get help until someone hits u or simular.
abuse is abuse should matter if its physical or not. just glad im in hospital away from it all for a bit. but the hospital r talking to my social worker today. im guessing they will be telling her i can go home. dispite the agony walking is causing me.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
i was in a care home for 4 months when i made my first complaint. it was no fun. the staff were like best buds so if u upset one u upset a few. and cos im not a yes person i upset a few lol. i now have care at home but i dont know how long for lol.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
i get on with anyone pretty much but not bullies. im honest too my social worker is well aware i dont like her or find here easy to talk too.
and thank u.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
I'm very sorry to read about the problems you've had with your carers and then the difficulty you've had in filing a complaint with the ombudsman.
seAp may be of use and could possibly help advocate for you, they say: "We provide independent advocacy services to help resolve issues or concerns you may have about your health and wellbeing or your health and social care services."
You can get in touch via their website, by calling them on 0330 440 9000 or by texting SEAP to 80800.
As an aside, your pen sketch of Lily is brilliant, did it take you very long?
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
thank u for the welcome. the sketch is about A5 and took around an hour.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
I’m very very sorry to hear that you are still having big problems.
Please please let me know how you get on with your email.
I am very very happy in helping you further if required.
@steve51
@Adrian_Scope and @steve51 thanks. unfortunately they did not even respond to my email. it says within one working day. its been 2. lol story of my life lol.
the mental health leason team r ment to be coming to see me as everything has been getting to me. but they have supported to have been coming today or tomorrow for over a week now. go figger. lol. 🙃
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~
I know from reading you had many difficulties.
I use an organisation called RETHINK. Have a look on the web for details.
There are an advocate service for members of our community. Having problems with mental health services, their care anything else to appointments.
I used them because they speak on your behalf. Often meet up with you before hand and discuss what is needed to say.
Hope that helps you.
Please can I ask hope you coping in hospital. Sorry to hear also about the food. No one likes to hear this. Have you contacted or spoken to any one like PALS . Patient Liaison services . No one should be suffering.
Always supportive .
Take care.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
Glad you are feeling a bit better. I hope your day has been fine so far. I have ordered a Diamond Painting kit from Amazon and am currently waiting on it arriving so thanks for letting me know about it. I will let you know how I get on with it.
I am very very sorry for the delay in getting back to you!!!!!!
I’m in the process of going through my “PIP”
They have sent me there report/response of my home face to face.
The report is some one else’s to be honest!!!!!
Please please take my full “apologies”
@steve51
im on a new ward now and it is nicer. i need to walk 10 meters several times a day to go home but i think they will soon drop that as they r hoping the end of the week.
there in comes my next problem. had my meeting with social worker and carer agancy manager. and my sister. it was not a meeting it was them lecturing us on what they had decided before hand while making us wait 30 minutes. the manager said i could not change carer cos i dont like them. iv since pointed out to her where on her own site it clearly says that i can. so now she is saying u can but iv no one to replace her with and dont for the foreseeable future. wich is totally different. i really want to call her out on it. or tell my social worker i dont want them anymore. but i know she will say we only have to provide a service not one u like wich is pretty much what she said before. so i feel like its a u have them or no one situation.
Try to be a rainbow in someone else’s cloud.
~Maya Angelou~