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hi all

RainbowJoRainbowJo Member Posts: 79 Courageous
so im jo. (female hence no e). im 45 till august. i love most animals. arts and crafts. writing but not so much reading. gaming.

ok so i have a long list of factors that bought me here. ill list them and if u want to know anything about them feel free to ask. 

im registered severe sight impared (used to be blind) iv limited vision close up. 
congenital cataracts (removed)
nystagmus 
tunnel vision
glaucoma
aphacia
highatis hernia
high blood presure
antiphospholipid syndrome 
depression 
disociative identity disorder 
bpd
ocd
anxioty
some kind of degenerative back issue
looking to do get a diagnosis for autism 

phew i think thats them all. thanks for reading. 

Try to be a rainbow in someone else’s cloud. 
~Maya Angelou~


Replies

  • zakbloodzakblood Member Posts: 419 Pioneering
    welcome to the forum young lady
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    thank u.
    zakblood said:
    welcome to the forum young lady

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • debbiedo49debbiedo49 Member Posts: 2,906 Disability Gamechanger
    Welcome x
    💜🏴󠁧󠁢󠁳󠁣󠁴󠁿
    I am a fibro warrior !💜♏️
  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Welcome to the Community, @RainbowJo.  It is nice to meet you.  How are you today?  I like animals and arts and crafts too.  What kind of arts and crafts do you enjoy doing?  If we can be of any help to you then please just let us know.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    i draw. colour. use water colour brush pens. clay. cant think lol diamond painting. 

    today im in a lot of pain. im in a hospital rehab ward after a fall 2 weeks ago that did my back in. so yeah not too much fun really lol. 

    thank u for the welcome. 

    here is a biro pen sketch of my late cat lily. she was 18 and a half years young. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Oh wow, that is a fantastic sketch of Lily!  She looks beautiful and 18 and a half is a great age!  My cat, Christy, is 6.  That sounds like some really interesting drawing/painting that you do.  I have never head of diamond painting before.  Have you been doing that long?  I'm sorry to hear about your fall and that you are in so much pain.  I hope you feel better soon and you get home asap.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    thank u. so do i. but its going slowly lol. lily was a rescue cat id had her 5 years that felt like her entire life. 

    dimond painting is done by sticking round or square plastic resins on a pre printed canvas. 


    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Glad your pain is easing slowly @RainbowJo.  I hope you feel better soon.  Lily sounds lovely.  My cat is a rescue cat too.  I think rescue animals make great pets!  Thanks for sharing the images of diamond painting.  It looks fab!  I think I recognise it now and have seen it before online.  It looks very intricate and must take a lot of patience.  I hope you enjoy it.  I do knitting and like to make cards.  Get a lot of enjoyment from it.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @Ails

    ur welcome. the diamond painting is really easy. the repetitiveness is calming. 

    my sister is a trustee for the pet rescue charity i got my lily from. miss her dearly but i cant have pets any more as the carers wont even hover up cat hair. if i get a guide dog they will be stuffed as they cant say no to that. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Oh that's good that the diamond painting is easy then and the repetitiveness calming.  I may give it a go sometime as always looking for a new craft to do as get bored with cards after a while.  Yes, you must miss Lily a lot as pets become such a big part of your family.  It's horrible when they go!  I have had 2 dogs in the past and I was traumatised when they died.  Dreading the day my Christy goes!  Hopefully not for a while though!  That's terrible that you feel that you can't have any pets because of your carers.  Yes, getting a guide dog would be a good thing.  They do wonderful work.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @Ails my sister has a georgous cat i get to love too so not too bad. 

    i get mine from wish as they r just as good quality but way cheaper. u do have to wait a bit for them to arrive. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Oh that's lovely @RainbowJo that you get to love your sister's cat too.  Cats are awesome!  Oh I have never heard of Wish before.  I will need to look that up, thanks.  It's normally Amazon that I order stuff from.  Be worth the wait if they are cheaper.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @RainbowJo   Pleased to meet you. Thank you for sharing.

    I am one of the team of community champions on the forum.

    Please if I can help or advise or wish to ask anything..

    If you need to any support or organisations or further information relevant to your conditions or illness.

    Be happy to find out for you.  Be supportive.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @Ails they r worth it. iv bought from both and there really is no difference in quolity. there r tons of youtube that will show u how to do it but its easy. 

    @thespiceman thank u for the welcome. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • Connie00Connie00 Member Posts: 255 Pioneering

    Hello @Ranibowjo

    My Name is Connie00

    I am one off the community Champion’s here at Scope.  it’s really nice to meet you.

    A warm Welcome to the Community

    Thank you for reaching out to us. I hope you are having a good day today,

    Oh my that is a lot of conditions, you are suffering with,

    Sorry you are hospital, but at least you are getting some practical help and support.

    I must say you are a very talented artist.

     

    If we can be of any help or support to you please let us know.

     

    Enjoy the rest of your day

     

     


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Thanks for the tips @RainbowJo.  The diamond painting does look great so I will definitely give it a go and will let you know how I get on.  How are you feeling today?  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • emmarenshawemmarenshaw Community champion Posts: 704 Pioneering
    Hello @RainbowJo welcome to the community. I'm sorry you're going through so much, but know that we're all here to help and support you should you need anything. You're art is lovely.
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @Connie00 thank u for ur kindness. and the welcome. 💜

    @Ails ur welcome. will look forward to seeing wich u choose to do. im ok today. bit of pain as my back twinged but considering 2 weeks ago when they thought id fractured my spine in a few places im great so knowing that keeps me going. 😃

    @emmarenshaw thank u ffor the welcome and ur comment about my art. 😃

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @RainbowJo

    Good Evening it’s great to meet you today.

    I am another Community Champion here at Scope.

    Please please let me know if there’s anything that I can help you with???

    @steve51
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @steve51 thank u for the welcome. 

    im still trying to work out the best place for what i want to say. it relates to adult social care and none physical abuse. iv got a bit of time to work it out as im in hospital anyway. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @RainbowJo

    No probs it’s my Pleasure 😇😇

    Yes I’m very very happy in pointing you in the right direction.

    Is it just “Adult Social Care” that I can help you with???

    Please please let me know how you feel??

    @steve51



  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @RainbowJo

    Good Morning!!!!!!

    I have found some info for you below on “Adult Social Care”

    https://www.scope.org.uk/advice-and-support/introduction-to-social-care/

    Please let me know if you have any problems as there’s more to come if required????

    @steve51
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @steve51

    thanks for the link. im beyond all that iv had carers for 3 years. im suffering according to a solicitor (we cant find one to take my case on) emotional abuse. emotional abuse and neglect. and organisational abuse. by my carer agency manager and my social worker. 

    iv tried complaining. i got what i have now out of my original complaint. so was told go to the ombusman. they wont help cos i cant put it all in a coherant letter or chronological order as iv memory issues. they wont take a full complaint over the phone. 

    it just annoys me. if it were physical abuse there would be someone to step in and say no contact till a full investigation is carried out. new social worker would be put in place. but as it is nothing and the very people im complaining about r looking into the complaint. its all wrong. if u feel ur suffering any form of abuse there should be somewhere to turn who would step in. not just for physical. cos thats like saying u dont deserve or ur not going to get help until someone hits u or simular. 

    abuse is abuse should matter if its physical or not. just glad im in hospital away from it all for a bit. but the hospital r talking to my social worker today. im guessing they will be telling her i can go home. dispite the agony walking is causing me. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • zakbloodzakblood Member Posts: 419 Pioneering
    sorry to hear your problems and many thanks for sharing, we have two care homes near where i live, both have such problems keeping staff, seems no one lasts more than a few months, seems management only care about money, not the people in side and certainly not those who work there, i talk most days with some people from the 2 centers who stand out side my house waiting for the bus, kind of makes me sad that we still haven't got a proper system for care in the community where everyone can feel at home, and fell safe and happy
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @zakblood thank u for the welcome. 

    i was in a care home for 4 months when i made my first complaint. it was no fun. the staff were like best buds so if u upset one u upset a few. and cos im not a yes person i upset a few lol. i now have care at home but i dont know how long for lol. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • zakbloodzakblood Member Posts: 419 Pioneering
    you shouldn't have to complain, the systems put in place should be there to make you happy and make you feel at home, not other wise, so you have a right to complain when things don't go on how they should, this seems to be what's happening around the corner at both places near me, no one is happy, staff or the people who are there in care, and it's sad, that someone down the line are making money out of others suffering, as you should be happy and feel secure, not saying you will get on with everyone in life either, as some people aren't so nice, but i try to be the same with everyone, but don't always get the same response back, there loss, take care and hope it all gets better for you 
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @zakblood ur right. people do profit off it too. 

    i get on with anyone pretty much but not bullies. im honest too my social worker is well aware i dont like her or find here easy to talk too. 

    and thank u. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,951 Scope community team
    Hello @RainbowJo and a belated welcome to the community. :)

    I'm very sorry to read about the problems you've had with your carers and then the difficulty you've had in filing a complaint with the ombudsman.  
    seAp may be of use and could possibly help advocate for you, they say: "We provide independent advocacy services to help resolve issues or concerns you may have about your health and wellbeing or your health and social care services."

    You can get in touch via their website, by calling them on 0330 440 9000 or by texting SEAP to 80800.

    As an aside, your pen sketch of Lily is brilliant, did it take you very long?

    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @Adrian_Scope thank for the info will look into it. much apreciated. 

    thank u for the welcome. the sketch is about A5 and took around an hour. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @Adrian_Scope i just sent an email. but when i was looking about after it asked me to chose my local althority and mine was not on the list. looks like they cover the south regions of the county only. ill wait and see what they say. thanks anyway. 

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,951 Scope community team
    I'm sorry to hear that @RainbowJo. Let me know what they say and if they're unable to help, we'll try and find something else to signpost you towards.
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @RainbowJo

    I’m very very sorry to hear that you are still having big problems.

    Please please let me know how you get on with your email.

    I am very very happy in helping you further if required.

    @steve51

  • lostpuppy42lostpuppy42 Member Posts: 5 Listener
    just a high and welcome these guys will steer you right and the skills are very good
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    @lostpuppy42 hi and thank u. 

    @Adrian_Scope and @steve51 thanks. unfortunately they did not even respond to my email. it says within one working day. its been 2. lol story of my life lol. 

    the mental health leason team r ment to be coming to see me as everything has been getting to me. but they have supported to have been coming today or tomorrow for over a week now. go figger. lol. 🙃

    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • Adrian74Adrian74 Member Posts: 15 Listener
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @RainbowJo Sorry to hear of your problems and issues.

    I know from reading you had many difficulties.

    I use an organisation called RETHINK.  Have a look on the web for details.

    There are an advocate service for members of our community. Having problems with mental health services, their care anything else to appointments.

    I used them because they speak on your behalf.  Often meet up with you before hand and discuss what is needed  to say.

    Hope that helps you. 

    Please can I ask hope you coping in hospital.  Sorry to hear also about the food. No one likes to hear this.  Have you contacted or spoken to any one like PALS . Patient Liaison services .  No one should be suffering.

    Always supportive .

    Take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hi @RainbowJo,
    Glad you are feeling a bit better.  I hope your day has been fine so far.  I have ordered a Diamond Painting kit from Amazon and am currently waiting on it arriving so thanks for letting me know about it.  I will let you know how I get on with it.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @RainbowJo

    I am very very sorry for the delay in getting back to you!!!!!!

    I’m in the process of going through my “PIP”

    They have sent me there report/response of my home face to face.

    The report is some one else’s to be honest!!!!!

    Please please take my full “apologies”

    @steve51
  • RainbowJoRainbowJo Member Posts: 79 Courageous
    hi all. no appoligies needed sep for me taking for ever to get back to u. 

    im on a new ward now and it is nicer. i need to walk 10 meters several times a day to go home but i think they will soon drop that as they r hoping the end of the week. 

    there in comes my next problem. had my meeting with social worker and carer agancy manager. and my sister. it was not a meeting it was them lecturing us on what they had decided before hand while making us wait 30 minutes. the manager said i could not change carer cos i dont like them. iv since pointed out to her where on her own site it clearly says that i can. so now she is saying u can but iv no one to replace her with and dont for the foreseeable future. wich is totally different. i really want to call her out on it. or tell my social worker i dont want them anymore. but i know she will say we only have to provide a service not one u like wich is pretty much what she said before. so i feel like its a u have them or no one situation. 


    Try to be a rainbow in someone else’s cloud. 
    ~Maya Angelou~


  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hi @RainbowJo.  How are you feeling?  I'm glad that your new ward is nicer and I hope you get home soon.  Sorry to hear that your meeting wasn't good with the social worker and carer agency and hope you get things sorted.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • AilsAils Community champion Posts: 2,268 Disability Gamechanger
    Hope you are feeling better @RainbowJo.  I received my Diamond Painting kit the other day there so going to give it a try.  Thanks for letting me know about it.  I'm looking forward to doing it and will let you know how it goes.  :smiley:
    Winner of the Scope New Volunteer Award 2019.   :)
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