CIDP

LindsayLitster
LindsayLitster Online Community Member Posts: 1 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi, I was diagnosed with CIDP in November last year. Anybody out there who would like to share experiences?

Comments

  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @LindsayLitster and a warm welcome to the community!! CIDP hasn't been mentioned on the community in a while. However, I hope the support from like minded people will help you. Please do let me know if I can do anything to help :)

  • Adrian_Scope
    Adrian_Scope Posts: 11,750 Online Community Programme Lead
    Welcome to the community @LindsayLitster.
    As Chloe said, CIDP isn't something that's come up here recently. However, you're of course welcome to stick around and become part of our community.
    Are you receiving much support at the moment in regards to your condition? I'm sure you've already come across it, but perhaps Gain might be of use to you?
  • dolfrog
    dolfrog Online Community Member Posts: 439 Trailblazing
    you could have a look at "Treatments for chronic inflammatory demyelinating polyradiculoneuropathy (CIDP): an overview of systematic reviews" 
  • Gren123
    Gren123 Online Community Member Posts: 1 Listener
    Hello all just joined. I had GB 3 times in 2018 and at the end of the year it was diagnosed as CIDP> As of June 2019 I am awaiting treatment . So will keep you all appraised
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @Gren123 and welcome to the community! I really hope the treatment works for you. If you need any help with anything then please do let us know :)
  • Adrian_Scope
    Adrian_Scope Posts: 11,750 Online Community Programme Lead
    Welcome to the community @Gren123. Glad to hear from you. Do you have a timetable for your treatment yet?

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