M.E/cfs

anonG

I have a lot of health issues i got a gp into house call and tried explaining how i was physically but cried because its affecting my mental health . The suicidal feeling are alway with me ecause i keep getting worse no sign of any improvement at all. I live in constant pain. I was crying and trying to tell her my problems and at one point she said to me whatever. Are dr allowed to practically call you a liar in that way. I'm fed up being the one they take their stress out on . I am in a living hell, lucky to get out of bed one day a month i dont have a lot of help or any company my personal hygene is pratically non existent. I am embarressed to say that because i took pride in myself my hygene hair,make up perfumes and matching clothes but its all too much for me. I'm 58 yrs old so not an oap yet but if i'm to be in this mess much longer i dont know if i can do this. I do not want a stranger coming in to wash me. I wish i could get strength to be able to shower even once a week. I have developed lung nodules and hardly any movement i can hardly breathe, but i do smoke too. I'm existing not living and gp's are terrible they are discriminating against me for a fibromyalgia diagnoses i got that before it was discovered i had gout they left me for yrs and yrs complaining of excessive sweating and being soaking wet with a smell of urine from nearly every pore on my body and my head if i hadn't asked to have my uric acid levels checked it would still be going on but i was right and the reason i knew about uric acid was because my ex husband used to sweat the same and he had gout so i was diagnosed with gout. I had a telephone conversation with a gp and told her i had really painful hands this was near end of 2017, my gp came back to me and said you had a positive Rheumatoid factor in 2016 no one told me but my gp got me to rheumatologist and made sense of the sore hands,lung nodules ect. I was also told i had kidney stones they bring me to the floor just trying to walk in the house. I thought there was a bit of hope and that they would get them out one less big pain. They are now saying they are not stone they are calcium build up not doing any harm. I am in agony when i get that wakened day just trying to do washing with this kidney pain. The lung pain is getting worse too. I'm at a dead end please dont tell me to speak to mental health i was insulted by them too. They young shrick told me i was too intelligent to have a mental illness. I'm sick of all of them i hated that gp coming to my house insulting me i cant fight much longer. Dont tell me to speak to Samaritans because i have said everything here. Thanks if you took the time to read this.😢

Chloe_Scope

Hi @anonG, thank you for taking the time to share this with us all and I'm sorry to hear your physical and mental health, it sounds like things have not been easy for you at the moment. How long has your health been like this?

Do you currently get any support from social services or family/friends? It is possible to request a social services needs assessment yourself and they would do a house assessment which can help with adaptions or support. If you don't want people to come in to support you the adaption may help to increase your independence. 

I know you have said not to speak to Samaritans, but please do contact them on 116 123 or email at [email protected] if you are feeling suicidal and they will be able to support you. Or contact emergency services on 999 if you feel you are in immediate danger.

Please do be in touch if we can support you with anything else.

anonG

I don't want help with my mental health. I need to know why gp's and consultants can leave you in such a low state by belittling you. I know my biggest pain problems but they refuse to take the calcium out of my kidneys, cut the nodules from my lungs. That would maybe make a big difference to me.No one gives a hoot and treat you like a liar. The ME is so bad i feel as if I'm dying. I know about help from DOIL and adaptions but they are no good to me if i cant breathe and in a lot of pain when i know they can sort some of me. If they did i know it would cheer me up and instead of depression and ME i might be a bit brighter. The ME causes inflamation and i know my kidneys inflame on very little walking but because i have calcium in my kidneys its agrivating the kidneys and causing excruciating pain that pulls me down. I'm left like this and have to get on with it. I live in my bed most of the time and see no one from month to month. Or i do see someone only for their needs. I have a lovely wee dog who hasn't even got a life,forby going to door into garden to toilet and back in again my oldest daughter died 2 yrs ago come 31st July I have another daughter with 4 children baby has to have big op on 19 th July, probs with teenager and her own thing to get on with another son who has been diagnosed with fibromyalgia and other health issues. Does a wee job and is down cant wake for days theres simply no one to help me but surgery kidneys and lungs. The gp's are already too cheeky i dont even want to speak to them i'm at my wits end. I have no idea where to get help writing to these evil ppl who just make my mental health worse my problem is the NHS that i am under.

Chloe_Scope

Hi @anonG,

I'm sorry to hear this, it sounds like things have been really difficult for you.

The ME Association may be worth having a look at as they will specialise in ME support.

Would you like to complain about you GP? This can be done via your Patient Advice and Liaison Service (PALS) and here is more information about the complaints procedure. 

Alternatively, SEAP is an independent charity that provides free independent advocacy services. 

Please be aware that the process can be different if you live in Scotland, if this is the case then please do let me know

anonG

I live in Scotland. My luck only me!

anonG

I have been through the ME association and there are suppot groups but not one near me. The only place in west central scotland with no help for me.

Chloe_Scope

Hi @anonG, I'm sorry the ME Association did not have a support group near you. Here is the service directory for Action for ME which may have something closer to you.

Here is an article on the NHS complaints procedure in Scotland. If you need anymore support with this then please do let us know

anonG

Hi everyone,i must sound as if i'm looking for sympathy i'm not please believe me. I am looking for a gp who will respect and have a bit of empathy not a lot just a little. I have the gp who told me "whatever" and to complain guess who the complaints go to? Her that is an evil evil woman. I asked before to speak to practice manager and a quarter of the way into talking to this very abrupt woman she butted in on my concerns stopped me in mid sentance saying "If you dont like the practice find another one" I thought practice managers were there to help and listen to patients,but it was her the gp who treats me like dirt and i dont know why. I have a lot of debilitating conditions i've had a heart attack too. With a history of a bad viral lung infection they said had caused the fibro so many people think is hypocondria. I hate the label fibromyalgia because you are left with a load of undiagnosed conditions unless you have a clue your self what might be wrong. I wish i could sue them but i dont think i'll be alive long enough to do so and they just go on treating you so bad not thinking your mental health is already bad or just not caring. I can't believe over 20 yrs how bad ive been treated i'm so really upset they do this to people or is it just me. I've had a hard life from a child i would never ever want life again and i am a Christian. I feel so bad by these gps also some consultants. I just want out!!!!!