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M.E/cfs

I have a lot of health issues i got a gp into house call and tried explaining how i was physically but cried because its affecting my mental health . The suicidal feeling are alway with me ecause i keep getting worse no sign of any improvement at all. I live in constant pain. I was crying and trying to tell her my problems and at one point she said to me whatever. Are dr allowed to practically call you a liar in that way. I'm fed up being the one they take their stress out on . I am in a living hell, lucky to get out of bed one day a month i dont have a lot of help or any company my personal hygene is pratically non existent. I am embarressed to say that because i took pride in myself my hygene hair,make up perfumes and matching clothes but its all too much for me. I'm 58 yrs old so not an oap yet but if i'm to be in this mess much longer i dont know if i can do this. I do not want a stranger coming in to wash me. I wish i could get strength to be able to shower even once a week. I have developed lung nodules and hardly any movement i can hardly breathe, but i do smoke too. I'm existing not living and gp's are terrible they are discriminating against me for a fibromyalgia diagnoses i got that before it was discovered i had gout they left me for yrs and yrs complaining of excessive sweating and being soaking wet with a smell of urine from nearly every pore on my body and my head if i hadn't asked to have my uric acid levels checked it would still be going on but i was right and the reason i knew about uric acid was because my ex husband used to sweat the same and he had gout so i was diagnosed with gout. I had a telephone conversation with a gp and told her i had really painful hands this was near end of 2017, my gp came back to me and said you had a positive Rheumatoid factor in 2016 no one told me but my gp got me to rheumatologist and made sense of the sore hands,lung nodules ect. I was also told i had kidney stones they bring me to the floor just trying to walk in the house. I thought there was a bit of hope and that they would get them out one less big pain. They are now saying they are not stone they are calcium build up not doing any harm. I am in agony when i get that wakened day just trying to do washing with this kidney pain. The lung pain is getting worse too. I'm at a dead end please dont tell me to speak to mental health i was insulted by them too. They young shrick told me i was too intelligent to have a mental illness. I'm sick of all of them i hated that gp coming to my house insulting me i cant fight much longer. Dont tell me to speak to Samaritans because i have said everything here. Thanks if you took the time to read this.😢
Replies
Do you currently get any support from social services or family/friends? It is possible to request a social services needs assessment yourself and they would do a house assessment which can help with adaptions or support. If you don't want people to come in to support you the adaption may help to increase your independence.
I know you have said not to speak to Samaritans, but please do contact them on 116 123 or email at [email protected] if you are feeling suicidal and they will be able to support you. Or contact emergency services on 999 if you feel you are in immediate danger.
Please do be in touch if we can support you with anything else.
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I'm sorry to hear this, it sounds like things have been really difficult for you.
The ME Association may be worth having a look at as they will specialise in ME support.
Would you like to complain about you GP? This can be done via your Patient Advice and Liaison Service (PALS) and here is more information about the complaints procedure.
Alternatively, SEAP is an independent charity that provides free independent advocacy services.
Please be aware that the process can be different if you live in Scotland, if this is the case then please do let me know
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Tell us what you think?
Complete our feedback form to help us to improve your community.
Here is an article on the NHS complaints procedure in Scotland. If you need anymore support with this then please do let us know
Scope
Tell us what you think?
Complete our feedback form to help us to improve your community.