Dealing with chronic pain
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I'm a wheelchair user with chronic back and hip pain

milojinx23milojinx23 Member Posts: 3 Listener
edited July 2019 in Dealing with chronic pain
Hi I'm a wheelchair user with chronic back and hip pain I have been taking pain killers constantly and I'm getting deep tissue massages but nothing is helping anyone have any ideas on what I should be doing because I don't have a live anymore I'm constantly in the house because I'd be lucky to spend an hour in my wheelchair 

Replies

  • EmmaBEmmaB Member Posts: 263 Pioneering
    Hi @milojinx23
    My situation is different from yours but it might be relevant to explain:  I am a mobility scooter user with very weird hips and curved spine... last year my hip pain was so severe that I thought "this is it" I'm going to have to have surgery"...
    However after a course of hydrotherapy - which was very nice but didn't solve the problem, I saw one of the best physios I've seen in the NHS [and I've seen a few NHS and private ones in my nearly 50 years!] and although I was doubtful that the exercises she gave me would help I persisted with them - they were mainly stretches.  In fact it was the exercise that I was most doubtful about which has been the most transformative...
    In my experience most physios are pretty crap, maybe it's just because they freak out when they meet real disabled people!  But if you can find a good one then maybe that might help? 
    Obviously it really depends on what's going on with you but all I think I'm trying to say is that physio helped me so it might be worth considering.  I did have to persist with it [I think a lot of people are a bit "oh it hasn't worked" after they've done the exercises a couple of times and give up...] but the result for me was nothing short of a miracle and I'm hoping to stave off surgery for a long time to come!
    I guess your GP is your first port of call and they may be able to refer you to a specialist physio if that is appropriate, rather than just seeing the physio that just deals with the run of the mill stuff in the surgery [in my experience they are a bit hopeless but sometimes you have to go through them, find they are hopeless, then get the specialist referral...].
    I hope you can get it sorted because hip and back pain is all consuming; stretches were transformative for me and I imagine they would help quite a few wheelchair users because being seated means that the muscles could end up more and more contracted and that would cause pain.  I think a lot of pain comes from weak buttock/psoas muscles - look up the psoas muscle it's a pretty impressive one!  
    Another option is mindfulness which I have also used to good effect, the book Mindfulness for Health by Burch and Penman is particularly good because it explains how pain works.
    Best wishes.
    Emma


  • EmmaBEmmaB Member Posts: 263 Pioneering
    PS when I took painkillers for the pain I had it made no difference, because frankly I don't think they were dealing with the cause of the pain... 

  • milojinx23milojinx23 Member Posts: 3 Listener
    I was looking to get surgery for scoliosis but they told me my spine is badly curved which is a disgrace 
  • Liz99Liz99 Member Posts: 18 Listener
    Get a second appointment from a different doctor worth a try 
  • milojinx23milojinx23 Member Posts: 3 Listener
  • jajajaja Member Posts: 76 Pioneering


    I'm sorry you are in so much pain at the moment.



    Here are my ideas:

    Acupuncture - if you have a good practitioner it does relieve pain.

    Tens machine - it helps with certain types of pain but depends if you can cope with vibration

    Heat - hot water bottles

    Pain clinic - referral via GP

    Magnesium - epsum salts bath or spray oil. Eases aches but check side effects

    Counseling - help to deal with the emotional fall out of living with pain and the resulting issues.

    Sprays - heat and freeze sprays.

    Mindfulness


    I'm sure that there will be lots of other ideas.


    Best wishes
    J







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