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The unwarranted hype around stem cells

Richard_Scope
Richard_Scope Posts: 3,105

Scope community team

edited August 2019 in Cerebral palsy
Clinics claim that expensive stem cell therapies can help patients with dementia, autism, multiple sclerosis and even cerebral palsy - and crowdfunding campaigns to pay for the treatments are increasingly common. But are the patients and the donors being misled about the benefits and the risks?


Read the complete BBC article:
The unwarranted hype around stem cells

Scope
Specialist Information Officer and Cerebral Palsy Programme Lead

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Comments

  • atlas46
    atlas46 Member Posts: 826 Pioneering
    Hi @Richard_Scope

    I have read the article and would like to make some observations.

    All cells in the Central Nervous System (CNS), cannot repair themselves and there are no synthetic’s that have yet been discovered.

    So anyone who even suggests that stem cell treatment can repair the CNS, is wrong.

    I was involved in clinical research with the Stroke Association and confirm there is no medical research that has been published.

    I would say the parents who took their daughter for treatment, have been mislead, by that hospital.

    I do not know, how much you know about medical research, but there is an organisation called Cochrane, based in UK, with links across the world.

    They review all medical research that has been published, they add commentary and approve the quality, this is seen as the gold standard.

    This is then held in data bases on the Cochrane Library, the World Health Organisation uses over 85% of these reviews, in deciding it’s own guidance.

    Importantly the Cochrane Library is open to not only to the medical professionals, but the general public.

    I would advice anyone seeking stem cell treatment, to ask the doctor which proposes the treatment, to direct the patient/parents to the published research of this treatment on the Cochrane Library.

    I can save time, there is none about the CNS.

    Hope this helps.

  • Richard_Scope
    Richard_Scope Posts: 3,105

    Scope community team

    Thank you for your input @atlas46. I get lots of enquiries about stem cell treatment and I think it is important that all aspects of this treatment are aired.

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • atlas46
    atlas46 Member Posts: 826 Pioneering
    Hi @Richard_Scope

    Some more information, following some research.

    I have checked the Cochrane Library, for published research for the treatment of CP, using stem cells.

    There is none.

    Also of note is UK Stem Cell Foundation, who fund research for specific conditions and they do not have CP listed for funding.

    I have a dear friend who has CP and if he asked me about stem cell treatment, I would urge him to forget it.

    Hope this helps.
  • Richard_Scope
    Richard_Scope Posts: 3,105

    Scope community team

    It confirms what I have found. There are many organisations that are springing up making a profit out of hope.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • forgoodnesssake
    forgoodnesssake Member Posts: 406 Pioneering
    That BBC link doesn't seem to work..
  • Richard_Scope
    Richard_Scope Posts: 3,105

    Scope community team

    I have fixed the link.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 

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