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Wanting to connect with people who understand fibromyalgia

Hi
I have multiple health problems and getting very little support, I am in pain all the time with fibromyalgia, disrupted sleep, tired often. I have a partner who looks after me.
I also have mental health issues but again getting little support from the NHS.
Anyway hello to everyone and hopefully will meet a few people who understand fibromyalgia.
I have multiple health problems and getting very little support, I am in pain all the time with fibromyalgia, disrupted sleep, tired often. I have a partner who looks after me.
I also have mental health issues but again getting little support from the NHS.
Anyway hello to everyone and hopefully will meet a few people who understand fibromyalgia.
Replies
Welcome to the gang x
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Hopefully someone with it will be along soon. In the meantime can you tell us a bit more about yourself? Feel free to look around the site. If you have other questions do ask them.
Have you introduced yourself yet? Regarding the lack of support, you might find this helpful- https://www.nhs.uk/conditions/social-care-and-support-guide/
Senior online community officer
I have changed the name of your post and I hope this helps other members with fibromyalgia connect with you.
Please do let us know if we can do anything else to help!
Scope
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It was identified long ago...1860s....before that it was not believed..an attention seeking complaint. I dont think so!
Everyone has heard of arthritus, everyone has heard of cancer, but fibromyalgia, never heard of it.
I have had a look at our local hospital about fibromyalgia they have a team there so will try and get referred by G.P.
But I have had fibromyalgia and mental illness for years, think they are related, the frustration of not being able to do anything, pain, lack of sleep, its all a big viscous circle. It is a horrible condition and the lack of understanding makes it 10 times worse.