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New PIP Claim

elle_telle_t Member Posts: 13 Listener
Hello I am knew to PIP and new here. Sorry for the long story in advance!!

I had a stroke on 17th May and have not worked since. I was previously always in full time employment. I started a PIP claim on 17th June, returned form in July and had F2F home visit on 27th August (never requested home visit). Visit was straight forward and nurse carrying it out was nice and just confirmed what was on form was factual.

I got a txt yesterday saying DWP had assessment and would hear decision within 6 weeks. Because I have been following others advice on here (thank you) I phoned this morning and asked for copy of report. The person who answered said there would no point in sending it out as the decision could change and I couldn't phone and contest what was written. I sad I knew this and to send it anyway which she is doing.

As well as stroke I have been diagnosed with mild heart failure and in addition I have a family history of Huntingtons Disease but have never been tested. I have now been referred for genetic testing, had an HD specialist nurse out today and have an HD consultant appointment in October, to try and help manage my symptoms all of which I told the assessor.

Since the stroke I am struggling to recover as I now have symptoms of HD (in particular involuntary movements, very poor co-ordination and anxiety) in addition to stroke symptoms, left sided weakness etc and as a result am not able to walk more than 10 metres without assistance of 1 person, I need full assistance with preparing and cooking meals etc due to dropping things and also full assistance getting in and out of the bath etc. 

I have put all of this information on my form and the nurse confirmed this by testing movement etc.

My question is, if anyone is able to answer, although I have now had the condition for 3 months to qualify would the fact that I have not had the genetic test to confirm HD mean they might not award it due to the "must be expected to last 6 months" factor.

Many Thanks

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