Disabled carer if Disabled daughter and main carer for my Grandson
Hi and sorry for the long rant but need some advice!
I am disabled but also main carer for my daughter who has Moderate Learning disabilities and on full pip payment, and main carer to my grandson to prevent him going into social services care, my husband and I started the Child arrangement order process, sadly my husband died of bowel cancer the week before the court hearing but i have parental responsibility for my grandson and since he was 8 months old. Now he's 2yrs old. I am Struggling financially anyway but have had to apply for PIP after getting the long dreaded letter saying My DLA was coming to an end. Just received my assessment decision and they have only given me standard rate care! Previously I was full DLA indefinitely, they have stated I choose to not take my medication which is not a choice as I need to keep my grandson safe, being on tramadol, codeine, duloxetine, naproxen, and paracetamol left me unable to function on a daily basis, sedated and unable to think clearly, being widowed and single carer for a young baby I could not risk not waking or falling asleep while little one was up and about! I have the worry of social services hanging over me as I need to apply (when I can afford it ) for a Special guardianship order and a three month investigation from Social services to go through. So no choice. And put up and shut up about how much pain I am in all the time.
Little one has developmental delay and speach and language delay and going through assessment himself.
They have also refused to entertain my mobility as an issue I have degenerative disc disease, cervical and Lumber spine, fibromyalgia, arthritis in my ankles also dyslexic, do not go very far out of the house, also since the assessment have tripped and trapped my sciatic nerve again. But according to them i can walk 50 but no more than 200 metres which is nonsense, I can not walk 100 metre even on a good day!
I am I'll health retired, got a very small nhs pension, carers allowance, both of which obliterate my UC payment to £95 a month and now trying to do the work capacity DWP assessment just to see if I could get more money than the £160 enhanced care component which I don't actually see due to the deductions of £614! I have just lost bereavement support allowance of £350 and now £295 with the change to pip from full care and mobility payment on DLA. While I am going to ask for the mandatory re assessment for the pip decision
I am really struggling to even cover my Bill's let alone food, nappies and Now Nursery lunch money and extra nappies. As little one has his 15hrs nursery placement.
I am wondering if I should try and return to work with all disabilities, my carer responsibilitys while not being able to leave grandson with his mother due to safeguarding issues. But if I do full time hours need to find £8000 nursery fees a year! Plus loss my pension and carers allowence, and have to find a job with high enough wage to cover it all, or if part time would still leave me struggling even if I could convince someone to give me a job either full or part time! Don't want to risk debt or worse losing my Husbands house which he work so hard to buy before he died. I really don't know what to do for the best! Everytime I try to reduce my cost it just gets me more financially worse off. Have not even had time to grieve yet either.
