If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
CFS/ME sufferers and PIP assessment
Rozp
Community member Posts: 1 Listener
Hi, I was wondering if anyone suffering from CFS/ME has successfully applied for PIP? It is a very debilitating condition yet PIP assessment seems to fail to recognise it's impact on sufferers!
Comments
-
@Rozp, hello and welcome, PIP is a benefit to help you with your daily living activities and mobility issues. PIP is not awarded on a diagnosis or illness or the amount of prescription drugs you are taking, but on your ability to preform the PIP descriptiors in a safe repeatable and timely manner. So when applying for PIP read and understand the descriptiors and how they apply to your circumstances.
-
Hi @Razp & welcome to the community. As mentioned above the onus is on you to describe any difficulties you have in any activities of daily living; 'going out' & 'moving around.'
You also need to mention if you can't do anything 'reliably,' i.e. if it's not safe to do so; causes you pain during/after an activity; if it exhausts you afterwards, or you're very slow at achieving an activity (such that it takes you more than twice as long as someone without your problems would face).
The following link is lengthy, but shows the 'descriptors', how & why points are awarded, etc: https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria
-
Hi @Rozp and a warm welcome to the community.
Some people with ME/CFS do successfully claim PIP, but it's about how these conditions affect you personally, not what your diagnosis is. I hope @chiarieds and @wilko's responses have been helpful explaining this in greater detail.
If you have any questions please don't hesitate to ask.Community Manager
Scope
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.