Hi, just joined today.
Hi, so pleased to have found this group. I have lupus, this year alone I've had pneumonia, maningitis, sepsis and other complications from both the disease and the treatment. I have two boys with disabilities. My 18yo has ASD, PDA, erythromelalgia ehlers-danlos and probably POTS. My 13yo has ASD, ADHD, Ehlers and possible bipolar. Sounds a lot,T but they are very bright academically and run rings around most adults! Also funny, charming and very tall!! I'm after advice on the transition to adult life and can help others especially with advice accessing social care funding and Pip. Thank you. X