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Hi I'm Nicola
NikkiJane94
Member Posts: 1 Listener
I was diagnosed with fibromyalgia last year in February. It was "brought on" after having a traumatic labour and delivery of my son Elliott. Whom we lost in September last year from a rare genetic disorder. Also Suffer with depression and social anxiety. Would like to chat with others who have similar issues or anyone who wants to chat about anything really. TTFN !
Replies
Disability Gamechanger - 2019
Hello @NikkiJane94
My Name is Connie00
I am one off the community Champion’s here at Scope. it’s really nice to meet you.
A very warm welcome to the Community.
Thank you for reaching out to us, I am very sorry to hear about the loss of your baby son Elliott no parent should have to go through that, have you got close family that are supporting you? I really do understand what you are going through. my darling its very early days yet, let yourself grieve.
I myself am a Fibromyalgia sufferer again mine was brought on by shock it was the loss of my new born granddaughter, we called her Angel. in the same year we had four deaths all very close family Members, I can remember thinking, watching my daughter go through what she went through and watching my Granddaughter peacefully pass away in her arms four hours later, I was distraught, I wanted to go in her place. anything to stop my daughters hurt. I also have other underlying problems all from that very traumatic year 2008 I always say we survived that we will survive anything,
every year on the day she was born and taken we as a united family both sets of grandparents along with my daughter and son-in-law and their other two children my daughter already had one child but went on to have another two years later after the loss of Angel anyway we all vowed we would celebrate that day every year, we wouldn't mourn it we would go to a theme park or to the beach for the day.have fun but we would remember her happily wonder what she would be like. we would let balloons off for her then all have a family meal, because this is what we do for every other member of the family. it keeps her memory alive.
The first three years were the worst for me, I was very upset very angry as well as coping with the Fibromyalgia. but there are Fibromyalgia support groups on line please take a look at these links I hope they help. and I am truly sorry for your loss
https://community.scope.org.uk/categories/chronicpain
https://www.nhs.uk/conditions/fibromyalgia/
https://www.mencap.org.uk/advice-and-support/dealing-bereavement
https://www.childbereavementuk.org/grieving-for-a-child-of-any-age
I will always be around if you need me
We are always here to lend support, help, and advise where we can,
If we can be of any assistance to you please don’t hesitate to contact us
@connie00
If there's anything you need, or anything we can do, please don't hesitate to ask.
Scope
If you have a few minutes to spare, we'd appreciate your feedback on our online community.
Thank you so much for sharing your story, that has come from the heart and how very brave to tell it with such compassion, it's not always about you didnt think you could help because you didn't have Fibromyalgia. you brought to the table compassion understanding knowledge, and the fact you can talk openly about your loss. that's the wonder of this forum, being able to share,
thank you Connie00