PIP, DLA and AA
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Pip f2f

herroabiiherroabii Member Posts: 20 Connected
Hi, just asking for some advice.
I was told I was getting a paper based review on my care plan and 150+ pages of recent medical evidence ( within last 4 years )
I rang today as I've not heard, and they have made me a face to face appointment. The person on the phone said he's not medically trained so could only read the note put on the system for me.
I was told I was put forward for paper review, someone else reviewed it then someone else reviewed it and said I need a face to face because of variables.
Just confused as to why they've changed? Never had it happen before, thanks.

Replies

  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Hi,

    Most people have a face to face assessment, it's rare to have a paper based one. I must admit 150+ pages of evidence is rather a lot to read and they possibly didn't read it all. Less is often more and if that was me then i would have gone through all that evidence with a fine tooth comb before deciding what exactly to send. The most important evidence to send is within the last 2 year, that's the most relevant.

    It could be that some of the evidence you sent contradicts another piece but i can only guess the reasons why but usually, a face to face assessment is needed when they've either not got enough of information or they need to verify a few things and the only way to do this is through a face to face assessment. Hope this helps. Good luck.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • herroabiiherroabii Member Posts: 20 Connected
    @poppy123456
    I assumed the same as I said I have more to send in and on the phone they laughed and said they had enough so I said I will take it to my f2f. I did say I'm in hospital twice a week every week for appointments sometimes more! It is a lot but I went from being healthy to having 5 specialists currently, emergency surgeries, possible IBD, and a few incurable conditions. It all came out of nowhere and I wanted to show I'd gotten worse since last assessment 4 years ago, so I just gave them every letter with something that was relevant to my care plan and backed up what I was saying
    Funny you say that, I've spent 2 years between 2 immunologist arguing the correct diagnosis, they finally agreed in the letter I have only just received so not send in, typical haha thanks.
  • herroabiiherroabii Member Posts: 20 Connected
    @poppy123456
    Strange question, wondered if you might know, 

    Do you know of anyone being asked to present photos etc of conditions?

    For context, my face lips throat and tongue swell massively which impacts my eating/medication taking abilities But it's random and chronic, so more than half the days in a month it happens. 
    I have the photos as immunology request me to keep a diary, but wondering if this is what they need from me. Thanks
  • cristobalcristobal Member Posts: 966 Disability Gamechanger
    @herrobil - too late now but I'd advise reading through the 150 pages and sorting out the irrelevant stuff. 

    If it doesn't say something about the effect that you condition has to complete the various day to day task then I'd leave it out.

    Having rooted through mine I got it down from about eighty pages to three - and they are more likely to be read.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    PIP isn't awarded based on a diagnosis, it's how those conditions affect your ability to carry out daily activity based on the PIP descriptors. 150 pages really is excessive amounts of evidence and really isn't needed. If it's not relevant then don't send it.

    As for photos, i've never personally sent them or heard of anyone that has sent them so i can't answer that i'm afraid.

    You will need to attend the assessment unfortunately, if you fail to attend then your PIP could be stopped for failing to attend.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • herroabiiherroabii Member Posts: 20 Connected
    @poppy123456 @cristobal

    Ah I see, I think I have caused some confusion from being unclear. 
    I personally did NOT send pip 150 letters. This is what PIP told me on the phone they had approximately all together. From me, 5 specialists, mental health and social services. Obviously I have no control of what the specialists send in and I'm seen every 12 weeks for immunology, for something else I'm seen twice a week, all of my specialists are in different areas so there is 0 communication apart from my immunologist and allergist will write a letter together, the rest are all separate so I'm now assuming pip asked about me and each Dr literally sent them everything dating back to 2013 - which would contradict now as they thought it was psychosomatic, but it's rare autoimmune disease. Thanks for the help!! :)
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    It's very rare for them to contact 1 medical professional but for them to contact 5 is incredible.

    Are you transferring from DLA and they have used your DLA file as evidence? This would seem the most likely explanation as to why they told you they have all that evidence.


    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
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