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Hi, my name is The_girl_who_lived!

The_girl_who_lived

Feeling low, 13 years ago I had a horseriding accident that lead to a severe brain injury. I was supported by my family to regain health and began pursuing a career in health care.

A month ago, I had a CT that showed areas of 'brain shrinkage'. Due to difficulties with my mobility and cognitive functioning I have been placed on medical suspension from work. I'm really struggling to accept the changes that are happening to my body. I have trouble walking and become fatigued easily.

Waiting on the visit with the nuerologist is scary. Waiting for work to decided if I am physically able to work in the role I enjoy so much, is scary.

The long term affects of my previous brain injury mean that I do not cope well when there is a lot going on. I spend a lot of time in bed or on the sofa reading at the moment. I have no interest in seeing friends or doing things with my partner.

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steve51

Hi @The_girl_who_lived

Good Evening & Welcome ☃️☃️

I am also one of the “Community Champion’s” here at Scope.

I have also suffered a “Severe Brain Injury”

This happened in Spain in 1998 at the age off 32.

Mine was caused by a cluster of abnormal blood vessels (Brain AVM)

You are following a similar journey as I undertook.

“Headway” came in very useful whilst waiting NHS rehab.

I have also seen more “Neurologists” than I have had “Hot Dinners”

Work which I also ““Loved” had to be “Tackled” in the end.

All off this was “Written Off In 1998”

I was given “No Hope”

I do hope that this makes “sense & is helpful”

Please please come back to me if there’s anything that I can help you with????

@steve51

The_girl_who_lived

@steve51
Hi
Thanks for replying.

I am simply feeling like the life I have fought so hard for after my original injury is slipping away from me! After such a small blow to my head as well. This makes me feel incredibly vulnerable and the thought of running home to Australia and family is increasingly tempting.

With work, I don't know if I should simply be smart and walk away from working as a carer, as this is not something I will be 'fit' to do again for a very long time. Maybe ever, as noone knows how my brain will recover from this secondary incident.

The_girl_who_lived

@poppy123456 thank you for the information! I will process this when I am having a 'better brain day'

steve51

Hi @The_girl_who_lived

That’s my Pleasure☃️

Yes I have been in a similar situation myself☃️

Going from a Manager for over 10yrs having to commute 100 miles per week.

“Bang”

Following “Stroke” I 1998 everything “Stopped”

I was able to find a new job & started driving & had a 2nd child.

Then in 2005 “Bang” everything went back to square 1 & worse!!!!

I have got “going again”

This “Won’t Beat Me”

It has picked the “Wrong Person”

I’m “Sure of That”

I hope that you have had a “Good Day”

Please please let me know if you need any help/support with your current problems???

@steve51

poppy123456

The_girl_who_lived said:

@poppy123456 thank you for the information! I will process this when I am having a 'better brain day'

No problem. It's an awful lot of information to take it and for this reason you maybe better off speaking to an advice agency near you for a full benefits check for the Universal Credit claim because this is the only benefit you'll be able to claim while receiving SSP. PIP is completely different and not means tested.