Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
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Hi, my name is veganelle!

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veganelle
veganelle Community member Posts: 1 Listener
I am recently diagnosed with hEDS and feeling a little overwhelmed by the diagnosis, illness and the term 'disability' xx

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  • chiarieds
    chiarieds Community member Posts: 16,165 Disability Gamechanger
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    Hi @veganelle - Welcome to this both helpful & supportive community. I also have hEDS, so have a little understanding. We're all affected differently, & strange to say, I don't consider myself 'disabled' ( altho' my ability has been compromised); just someone who happens to have hEDS.
    Might I suggest you look at our UK's EDS website: https://www.ehlers-danlos.org/ which has local support groups too. See: https://www.ehlers-danlos.org/support/support-groups/
    Depending about how hEDS affects you, I have found this link may also help, as it gives our GPs an understanding as to how hEDS can have further implications in our lives: https://www.rcgp.org.uk/eds
    If I can help further, I will do my best to do so.





  • Adrian_Scope
    Adrian_Scope Posts: 11,386 Scope online community team
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    Hi @veganelle. You're really welcome here! :smile:
    I hope the resources Chiarieds has shared will be of some use, but if you have any questions at all, please don't hesitate to ask. In the meantime, you're more than welcome to jump in and start chatting. We're a friendly bunch and it's great to have you with us.
    Community Manager
    Scope
  • Ails
    Ails Community member Posts: 2,256 Disability Gamechanger
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    Hi @veganelle and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  How are you today?  I hope you enjoy your time with us.  You will receive lots of support and friendship on here.  I look forward to seeing you on the forum anyway.  If there is anything you need help with meantime then please don't hesitate to ask.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • chiarieds
    chiarieds Community member Posts: 16,165 Disability Gamechanger
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    Hi @veganelle - I've mentioned to @hannahm that you've both joined recently, & also have EDS, so perhaps may chat, & compare notes!
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