Hi, my name is ayomide76!

ayomide76
ayomide76 Community Member Posts: 8 Listener
in Start here and say hello
I have fnd! I don’t get taken seriously by my gp 
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  • thespiceman
    thespiceman Community Member Posts: 6,283 Championing
    Hello @ayomide76     Pleased to meet you.

    Thank you for joining and sharing.

    I am sorry to hear this.

    I am one of the team of community champions. We guide, advise support members of our community.

    Please may I suggest this organisation will be useful.

    https://www.fndaction.org.uk.

    Please can I also add if you are suffering from any mental health condition .  With your illness you could apply for advocate services.

    Charity called RETHINK.

    https://www.rethink.org.

    They deal with members of our community its mental health issues and advocate for NHS services.

    I had some issues with my Doctors used this charity. Spoke on my behalf. First meeting me and explaining what do I need to say.

    After an appointment to the Doctors all changed. Good relationship.

    Please can also add if this organisation is not in your area's. Use these two if you think you have a mental health issues with your illness.

    Anxiety and depression, often the main two.

    https://www.richmondfellowship.org.uk.

    https://www.mimd.org.uk.

    Might not be in all areas.

    The other way is to write down how and what you need . Please I need you to read this thank you.

    Can be effective.

    Or change Doctors speak to practise manager.  Of your Surgery.

    Please if there is anything further happy to be supportive.

    Please take care.

    @thespiceman

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  • chiarieds
    chiarieds Community Member Posts: 17,362 Championing
    Hi @ayomide76 - Welcome to this very friendly & helpful community, 'tho I'm sorry to read about you having FND. I hope my friend the spiceman's advice & links will help you. Our GP's knowledge of some disorders is sometimes sadly lacking. There are others here with FND, I've noticed recently.
    The only other thing I might add, in case you haven't come across it, is FND Hope UK, which is part of an international charity for those with FND. See: https://www.fndhope.org/who-we-are/fnd-hope-uk/ The more resources you have, the better! Sometimes this can lead to a referral that may better help you.
    Please come here & chat any time; it will always be good to hear from you.

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