I have classical ehlers-danlos syndrome and am a full time chair user.

peachpit

Hello, my name is Alice and I have classical ehlers-danlos syndrome and am a full time chair user. I’m looking forward to finding a community with everyone

TwistedSista

Hi Alice,my name is Lynne and I also use a chair at the moment due to losing my left leg below the knee,my prosthetic isn’t suitable at present so I’m back to my chair for now,the amount of times I’ve crashed into doors and walls is unbelievable,it’s a good thing my bungalow is sturdy 😆🤣It’s very nice to meet you and wishing you a Merry Christmas from myself and my family 🎄☃️❄️🥂🎁

Ami2301

Welcome to the community @peachpit! How has your weekend been? Hope you're keeping warm!

chiarieds

Hi @peachpit - Welcome to the community, Alice. I'm just joining in as someone who has the hypermobile type of Ehlers-Danlos Syndrome. The founder of our UK EDS Support group also had the classical type, whom I was fortunate to meet as she lived near me. Sadly she has since retired, & moved to be near her daughter & grandchildren.

Have you joined the EDS Support group? It may prove helpful, & they also have many regional support groups too. Here's a link: https://www.ehlers-danlos.org/

I'm not a wheelchair user, as I'm in too much pain to sit, but it's good to see you can get the benefit of others' opinions, with different problems, who do use a wheelchair.

Adrian_Scope

It's great to meet you @peachpit. I hope you'll find lots of support and friendship here on the community. 

brujah81

Hello my name is Kelly, i have Fibromyalgia, EDS and ME. i use crutches when i am indoors and a wheelchair when i am outside. I have been using the Scope website for a few days and i am learning my way around slowly. I dont know many people with EDS so its nice to have happened upon this thread

Love Kelly

Chloe_Scope

A very warm welcome to the community @peachpit!

brujah81

Welcome to @Peachpit you have been a member about the same time i have!

deb74

hi @Peachpit. We are a friendly bunch and are all here to support each other! I have been a member on and off for a couple of years and there are always people here to talk!

pollyanna1052

Hi, I first learned about EDS from Corrie....the actress who has EDS in real life too.

Just been diagnosed with spinal MS.  been a wheelchair user for many years. My spine twists to the left, so tomorrow I am having a new back fitted to my chair...it`ll stop me falling over to the left.

Scope is a great meeting place.xx

BoomBoomToot

Hi all I'm a fellow eds warrior, struggling with all the dislocating at the min. Hope you're all well 

janer1967

@TwistedSista
Hi my name us jane I am also a below knee amputee struggling getting to grips with a prosthetic leg is not as easy as you think is it.