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Claim PIP for ASD?

FranstrahanFranstrahan Member Posts: 898 Pioneering
I'm going to have a go and put in a claim. They can only refuse. Its affected me all my life though I only found out i had it this year, at 57. Bullied at high school which led to me being a fighter. I have a bad temper. Unable to hold down a job as couldn't cope with the ongoing social interaction thing, which led to me drinking heavily whenever i was employed as a means of coping. But been unemployed in my life more than in work. Cant form friendships as lack appropriate behaviour (think is the right way of putting it) and eventually anyone that does befriend me goes, saying I'm weird, or similar. Never had a relationship, no interest in love, sex, children, babies etc. I like being on my own. Cant cope with people, and end up drinking, I guess my way of coping. Cant even join a church, same thing happens. I tell myself dont screw up, but always do and end up drinking. I'm happier and dry when not involved with people. I use to mask it before I found out what it was but now I know I'm ASD I'm being honest about it.
Also I like and try to have a set routine, dont like change, and find a lot of things difficult to cope with. Annoyingly I find that people say they understand when they very obviously dont, or because I can appear 'normal' they suggest I'm not autistic "because my grandson is and you're nothing like him" .
Sure I could think of more but you get the idea. I want a part time job but know it wont work as it never has, so hope to find something in self employment, like before.
Bit concerned as my mh counsellor discharged me basically implying the mh problem stems from autism, and has referred me to Social Prescribing, whose name implies they get you out and about socially, meeting people, volunteering etc. I seriously do not want that.
Anyway, does anyone think I have a chance at PIP?

Replies

  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Franstrahan   Why not there is such a real situation you would and should get the support you deserve.

    If you want that reading your post.

    Please can I ask is the drinking becoming problems . Might need to ask me for any organisations or help.

    Your decision your choices, can offer a lot of organisations, charities if you wish to ask, happy to supply.

    I am sorry to hear the MH team discharged you.

    Understand if you do not want these things to help you, know from MH charities do a lot.

    Often a care plan to suit your needs.  Opportunities are there to use the skills, talents any abilities to not only help yourself.

    Also help any others, this my own story use what I learn to inspire heal those suffering.

    If never enrolled or joined would never ended up doing the role I love.  Using knowledge education to better myself.

    Other advantages are looking at every thing you going through.

    Claiming benefits always useful have support worker in your corner.

    In lots of ways.

    Speaks  for you.

    Please if I can be any help you know where I am.

    @thespiceman






    Community Champion
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  • chiariedschiarieds Community champion Posts: 6,896 Disability Gamechanger
    Hi @Franstrahan - There's no reason not to apply for PIP, but if you've looked around the forum about it, you will know it's not about any disability, 'tho these would be listed on a claim form, it's about how your disability affects you (which it undoubtedly does).
    In case you haven't looked at the descriptors, I'll give a link, so you can look through them trying to work out where you may be awarded points. For a standard award you need 8 or more points, & for an enhanced one, you need 12 or more. See:https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteria
    Hope this helps you decide.

  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @thespiceman
    Hello, it's only since I found out this year about the ASD that things have started making sense, even if that doesnt help much. So the drinking is only when I am in a long term Social situation like a job, a church, a friendship. I cant cope with it, and I drink, I suppose to help or to make it go away. So I'm fine now because basically on my own. I've been fine with my self employed work pet caring and gardening I guess coz I was having minimum contact with people. So cant see a job with people working. Plus I think Social Prescribing is all about contact with other people. So need some support to find the right job, but just wondering if I qualify for PIP.
    People say just go out and be with people. Bit like telling someone who's got a phobia about spiders to go and sit in a room full of them. I will apply for PIP I think anyway. They can only say no.
    If I work part time, gardening, dog walking, whatever, think I would still get the PIP (if I get it in the first place).
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @chiarieds
    Thank you for that link. A lot to read there, I will test myself later. Then I'll have an inkling how it's going to go, because I've decided to apply.
    I've been I'll with depression and anxiety for over a year, sitting around waiting for someone to help, and all that's happened is I get discharged from counselling as they think the problem stems from autism.
    Time to take the bull by the horns I think!
    Thank you.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Franstrahan    Thank you for post, reply.

    These are ones I used, give them a try.  Mental Health Charities

    https://www.richmondfellowship.org.uk.

    Telephone 020 7697 3300

    https://www.mind.org.uk.
    Telephone 0300 123 3393

    https://www.rethink.org.
    Telephone 0121 522 7007

    Autism Support
    National Autistic  Society

    Helpline 020 7833 2299
    Alcohol Support If you need it.

    https://www.alcoholics-anonymous.org.uk
    Helpline 0800 9177 650

    Anxiety depression links to excessive alcohol use.

    Please take care hope these help you.

    @thespiceman


























    Community Champion
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  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @thespiceman
    No it's not the alcohol that's the problem, it's long term Social interaction that's the problem. If I avoid that, I dont drink. I suppose it's a coping thing, I dont know. Counsellors say the depression and anxiety is from the autism, and they discharged me as autism is classed as a learning disability, not a mh problem.

    @chiarieds
    The only thing among the descriptors was the social engagement one I think. So seems a bit of a long shot, but will apply as need some help from somewhere. Hope for an assessor who will listen to the problem, but assume I'll have to fill out a form with all the info beforehand.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Franstrahan   please may add something you might be interested.

    Gardening a lot of resource centres, community centres so on, village halls areas of small land in towns villages.

    Need volunteers to do gardens.  

    I have problems socially interaction, this way volunteer.

    Meet people but not all the time as your usually given tasks on your own, if you wish to.

    I created herb gardens for many places North East and got involved projects growing own food.


    If you find a centre run for those with disabilities learning difficulties.

    You get a lot of support, just an idea.

    Anything they can help you with.

    Run by trusts or associations look on line nearest one to you.

    Expenses for travel lunch and some help with any issues.

    @thespiceman






    .



    Community Champion
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  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @thespiceman
    I really dont want voluntary work. I have done it in the past, at a food bank and a local book shop. Neither worked out. More importantly if I'm going to work I want paying for it! Universal credit approx £65 a week, no money, almost certainly part of the cause of my current mh problems.
    Dont like going out much at the moment but have to as I live alone.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Franstrahan   thought it might help. Just some ideas.

    I am confused that is all .  I got the impression you wanted some help, to interact meet people.

    Sorry I thought being helpful.

    Life to me is very short and its what you make it, despite everything.

    Old saying life is a journey.  Or my favourite one.

    If you put a stone in your path do you stop or go around or over or stop still.

    Since addiction spent thirty years hurting harming my body.

    Recent just last week health scares.  Scary frightening and I eat the healthy diet, do what I can.  Waiting for hospital to contact me any thing else they need to do.

    Made me realise how vulnerable I am in my middle fifties.

    Realise also make every day count, met lots of members, people and others with long term disabilities, illness, conditions.

    Understand having maybe problems adjusting to new diagnosis know it can be difficult.

    I am always aware of that and do have the knowledge education to heal myself and others.

    I do have sometimes call it the GOD complex about life be a good Christian help, support, offer guidance like me.

    Wasted so much time and energy, fruitless pointless hurting harming my self drinking drugs as well.

    All for what coping with had to abuse physical harm from family members.  Do I forgive  never we supposed not this.

    Use my time here to help those .

    I hope you understand, I am sorry I  can not help or give you what you need to help yourself.

    I want you to know am here if you ever want any advice, some support.

    Please take care.

    @thespiceman



    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
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  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @thespiceman
    Always glad of your help and advice but no I'm not a socialiser after all that's happened in the past. I prefer my own company, its safer and healthier.
  • OverlyAnxiousOverlyAnxious Member Posts: 1,160 Disability Gamechanger
    edited December 2019
    @thespiceman
    I really dont want voluntary work. I have done it in the past, at a food bank and a local book shop. Neither worked out. More importantly if I'm going to work I want paying for it! Universal credit approx £65 a week, no money, almost certainly part of the cause of my current mh problems.
    Dont like going out much at the moment but have to as I live alone.
    I don't know much about UC rates (still on old style ESA myself!) but that seems like a very low amount...are you sure that's as much as you should be getting?

    With regards to PIP for ASD, I think you'll struggle to prove your difficulties and gain enough points if I'm being totally honest.  Don't forget you'll need at least 8 points across daily living to get an award so it may not be worth the hassle if you're only looking at the 'mixing with people' descriptor.  I'm certainly not saying you shouldn't try for it though, obviously that's your choice!

    As you know, I'm not a socialiser either and even just visiting mental health assessors twice in the last month and having to visit a third next week is already causing me problems....let alone the thought of maybe having to visit one a week for whatever treatment they decide after 3 assessments!  I sit at home and really would like to work, even if just volunteering* but then when I try simple tasks with other people very quickly realise it's not going to work!

    *I was interested in your food larder thread last week.  Partly because I'm also a very fussy eater (combined with many food intolerances as well!) and wouldn't be able to eat half the stuff from a pre-selected food bank lol.  But also because I looked into it and found a local FoodShare group who seem similar to a food bank but on a large scale, delivering to schools and hostels etc.  They're looking for volunteers currently and it's something I've been thinking about...although thinking about it while sat here is obviously very different to doing it in the real world!
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    @thespiceman
    I really dont want voluntary work. I have done it in the past, at a food bank and a local book shop. Neither worked out. More importantly if I'm going to work I want paying for it! Universal credit approx £65 a week, no money, almost certainly part of the cause of my current mh problems.
    Dont like going out much at the moment but have to as I live alone.

    HI,

    Regarding your UC amount, are you sure that's what you're receiving? That is indeed a very low amount. UC is paid monthly not weekly and as you're over 25 then the standard allowance per month is £317.82 per month. Do you rent or own your home, live with a partner that works or claim any works pensions?

    Are you able to work? if not then have you sent in any sick/fits notes to start the work capability assessment process off?

    For the PIP claim then before you apply i'd advise you to have a good read of the link that was posted above because there's a lot of information in that link that will give you a better understanding of the PIP descriptors and what they mean.

    PIP isn't about not being able to work, people claim it and work. If you do decide to apply then when you fill out the forms you should put as much information as possible about how your conditions affect you against the PIP descriptors. Adding a couple of real life examples of what happened the last time you attempted that activity for each descriptor that applies to you.

    I noticed you mentioned the only descriptor that really applies is engaging with others. There's 9 other daily living activities, what about dressing/undressing? do you need prompting to do this? same for washing/bathing, do you need prompting or assistance to be able to do this?

    If only the one descriptor applies to you then this is very long shot to score 8 points for this descriptor, i would expect 4 points to be scored here for needing social support, it doesn't matter if you don't receive that support, if it's needed then it's still possible to score those points.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Franstrahan   I wanted to add your current situation.

    Another reason always said yes because many of the links have necessary reviews of benefits. First thing they ever do, actually when you enrol.

    Never thought be entitled to what I am now, but speaking to those organisations.

    Need I say more.

    @thespiceman




    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
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  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456
    The reason uc is so low is I took the advance in the beginning, also I got overpaid WTC, so they are taking that back too. It should all nearly be paid off I'd have thought. I have a WCA now on January 15.
    I looked at PIP before coz my then counsellor said I should apply but then I thought it looked unlikely. But now I've thought try, they can only say no. Did you see my opening post? I've lived alone now for nearly 15 years with very little help or money, and I guess they will say if I've coped that long - fine. I struggle with the world every day. I can mask it, or bluff, but cant keep it up and it either ends up in hitting the bottle or losing my temper when in a long term Social situation, like a job, a friendship, or church. The last 3 jobs I had I got sacked before I was even there very long, all after approx 6 weeks. Still, the only descriptor I could say really applys is the social engagement one.
    Theres loads more I could tell you. My aq50 forms just about tell it all, together with all the notes.
    Am I right then in thinking theres not a lot of support out there for ASD adults?
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Yes i read your post, i don't usually answer anyone's questions without first reading what's written. Living alone will make no difference to a PIP claim because it's not about the help you get it's about the help you need, whether you receive it or not. This is why reading everything that's in the link above will help you understand it more. There's a lot to read through and it will take a while but it's worth it.

    A quick glance at the descriptor may make you think that you don't fit the criteria and you won't be able to score those points needed for an award, or some may think they should score x amount of points but it's not always possible to score them. When you do some research, you may think differently.

    Very difficult to advise whether you'll successfully be awarded on an internet forum because no one knows exactly how your conditions affect you.

    Once you've had the work capability assessment if you're given limited capability for work related activity then you'll receive an extra £336 per month from the 4th month of your claim. If you're give just limited capability for work then your money will remain the same. Information here about the work capability assessment. The link states ESA but the process is exactly the same.


    Receiving support, there is never a lot of that out there but you could start by referring yourself to your local council for a needs assessment. See link. https://www.nhs.uk/conditions/social-care-and-support-guide/help-from-social-services-and-charities/getting-a-needs-assessment/



    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456
    Thank you Poppy, I will really have to sit down this weekend and get in to all this. Main prob is nobody knows my struggles. Live alone, no close friends or family. Plan is this coming year to sell up and move over Preston way to be closer to my second cousins. Ok they dont know me as such, but I'm making them aware of my problems. I'm going to use the WCA to get my grievances across hopefully.  When I had close family they kind of protected me from the world. I'm well aware of that now. Of course then we didnt know I was on the autistic spectrum.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    You're welcome. I totally understand all about ASD because my daughter was diagnosed with it about 4 months before her 18th birthday. It took me 14 years of fighting to get that diagnosis but i wasn't going to give up without a fight. She also has a learning disability and social anxiety disorder which is from the ASD. She claims Enhanced for both parts of PIP and lives with me.

    I totally understand what you mean by no one knows your struggles, this isn't unusual. Most people won't understand how much other people struggle with any disability they have. When you fill out the PIP forms you need to make sure you make it as clear as possible all about the struggles you have. If you don't put the information then they won't know how your conditions affect you, as advised, PIP isn't about a diagnosis, it's how those conditions affect you and everyone is different.

    If or when you do apply for PIP, when you receive those forms if you need more advice please just ask, i'm sure someone will advise you further. Or, speak to a local advice agency near you for help and support filling out those forms but do remember that the only person that knows how your conditions affect you is yourself.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456
    I have social anxiety disorder too. Found out about that before the ASD diagnosis. Yes, I'm def going to apply. Will read all the links over the course of the next couple of days, but feel sure I should be able to get some support, both practical and financial. Thanks for the ongoing help.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @OverlyAnxious
    Yes, afraid the UC is correct at the mo coz I took an advance at the beginning, also dwp overpaid my WTC and they have been taking that back out of my UC too. So doesnt leave much, but think both debts should be nearly all paid off.
    The PIP thing, I've decided after an online chat with Poppy here to go for it. Social interaction  is the main problem but I'm kind of going to have to step outside of myself and observe, and ask why is this person in this absolute mess. If that makes sense. Problem really, as alone now for nearly 15 years and no one I can call on as a witness. But, im struggling and need some support, so going to try PIP. I have a WCA coming up on January 15, so hoping to air my grievances there.
    The food larder thread, I thought I got totally misunderstood there. Heard about them somewhere and thought they were a great idea, me being a picky eater. At the moment I collect my parcel, bring it home, and take back quite a lot of the stuff next time I visit. They dont make up parcels to order, you get what you're given. Therefore arent the larders, where you walk round with a volunteer and choose stuff you actually like a much better way to go.
    My two voluntary jobs didnt work out, I was not getting on with the supervisor at the food bank one, so just walked out one day and never went back. And too much social interaction at the bookshop one. Quit there about a year ago, the depression was getting worse at that time anyway.

  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @thespiceman
    Well I'm going to claim for PIP and see how it goes. Poppy has sent some links together with info here on this thread, and I'm going to have a study thru this weekend. My attention span isn't as good as it ought to be, so going to have to knuckle down!
    Whenever I've done a benefit check thing online it's always come back with just UC. But I feel sure there must be more support - practical and financial - out there somewhere.

    Hoping to sell up and move this year to be nearer to my second cousins over Preston way. Distant family, and only found out about them December 2015. Only relatives I have left now, makes sense to be closer. And closer to a city, with all its services etc.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    An online benefit calculator is only as good as the information you put into them. They won't tell you what you can claim. UC is a means tested benefit and is the only means tested benefit available for anyone to claim because the old benefits no longer exist unless you're claiming a severe disability premium in another benefit, which you're not.

    As you're waiting for a work capability assessment once the decision's made on the if you're placed into the LCWRA group then you'll receive an extra £336 per month from the 4th month of your claim.

    As you currently own your own home then you won't be entitled to claim any housing element of UC. This means the Standard allowance is all you're entitled to for now.

    A benefit calculator will not tell you whether you're entitled to PIP because that's not means tested.

    Do be aware that once you sell your home if you have any savings of more than £16.000 then you won't be entitled to anymore UC and that will stop. Savings of between £6.000 and £16.000 then your UC will be reduced by £4.35 per month for every £250 over £6,000.

    If you plan to buy another home once you sell then then savings from selling your current home can be disregarded for 26 weeks, while you find another house to buy but this only applies if you plan to buy another house.

    A benefits calculator won't tell you want other support you can receive. For this you'll need to refer yourself for a needs assessment with that link i posted above.



    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456
    Once I sell here the house over there will prob eat up every penny. Tried to move in 2017 and this place did eventually sell only to fall thru a month later. Its valued at £125000 or it was then. 
    Thank you for all this info. Our benefit system really is so complicated. Good to know of someone who knows their way around in it.
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Franstrahan   you mentioned support, financial and so on.


    There is the links I provided for you.  Mental Health Charities.

    All you have to is contact them, all free. All lovely People.  

    Also one other final point lots of the staff are many of them joined charities as clientele work for them the charities.

    To reassure further give you some self esteem you not alone , like being on your own.

    You mentioned moving to Preston.  Some one I knew joined Mental Health Charity.

    Told floating support wished to move, as this one had branches all over UK.

    Rang up Branch where the clientele wanted to move to.

    Got help, support, assisted living.  All the reassurance to move, guided and advised .

    Now works for that charity.

    Please think about contacting any of the links, I gave.

    Yes it is all scary, frightening, so I say best wishes.

    You will succeed the first steps are the that road  Small ones to start with then larger as this time you achieving.  

    Happiness and solace.

    Always in prayers.

    That helps as well.  Your faith.


    @thespiceman





    Community Champion
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  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @thespiceman
    Yes thank you I have the links. I'm going thru all the info starting this weekend. Moving will be stressful I guess, but thought 3 years ago and still think I need to get nearer to family, however distantly related they are, and nearer to a city. So trying again, come springtime to sell up. 
    I did email Rethink over something or other a month or so ago and they got back to me. Just cant remember what I asked them now!
    Thank you for your help. There are so many knowledgeable people on Scope; I picked the right forum to join! x
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    Started my claim for PIP this morning, on the basis that the worse thing that can happen is they'll say no.
  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,949 Scope community team
    edited December 2019
    Best of luck @Franstrahan. When it comes to filling in the form, be sure to ask as much as possible or see if you can get face-to-face help to fill it in.
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @Adrian_Scope
    Thanks Adrian. Not really sure how to approach it as I live alone and not working, so who to ask for help filling it in, not sure. Been told they need to know how my disability affects me on a daily basis, and also to take that as being on your worse day. That's a start, I suppose.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    . Been told they need to know how my disability affects me on a daily basis, and also to take that as being on your worse day. That's a start, I suppose.

    Who ever told you that has given you the worst ever advice, sorry.

    Never ever ever fill out any form based on your worst day. Doing this can lead to all sorts of problems in the future and also could go against when attending a face to face assessment.

    PIP isn't about your worst day. It's how your conditions affect you at least 50% of the time over a 12 month period. You need to tell the truth and explain exactly how your conditions affect you all of the time and not just the worst times. Then add the real life examples for each descriptor that applies to you.

    If you filled out the form this way and when you attend your assessment it's one of your better days then the HCP will likely see straight through that and think "if that's your worst day then you can't be as bad as you stated" that will definitely go against you.




    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • cristobalcristobal Member Posts: 965 Disability Gamechanger
    @Franstrahan

    Have a read through so you know what the different ‘activities’ are - (search under DWP + PIP + assessment guidelines if you haven’t got the link)

    Tackle each one individually.

    For example Activity 1 is ‘preparing food’  - cooking a meal for one using fresh ingredients. Doesn’t include using an oven below waist height, nor serving the food up.

    If you can’t do this, for example you can’t chop vegetables or it’s not safe to use the hob because you constantly leave it on, then say why and give examples of what how you manage. 

    Do you need aid, or help/supervision? Or maybe you can’t do this at all?

    Do this for each of the activities.

    I found it useful to keep a diary so that you are clear in your own mind what you can and can’t do.

    To be able to complete an activity you have to be able to do it the majority of the time and ‘reliably’ - safely, to an acceptable standard, timely and as frequently as is normally required..

    Don’t tell them your life story…

    Good luck…

  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    Thanks @pollyanna1052. That was someone on the phone this morning.
    I think when the form arrives I'll have to get help then, but who from is the problem. The autism badly affects any social interaction for one thing, be it in a job, friendship, church etc. If I'm basically on my own that side of things wouldn't count. Also I like a routine, dont like changes or surprises. The current depression and anxiety always there to some extent.
    This isn't going to be easy.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @cristobal
    When I looked at the descriptors only number 9 seemed to be the one. And the budgeting one maybe. I have ASD, SAD, depression and anxiety. I have good days and bad days, like anyone.
    Will refer back to all the advice I've been given in this thread when I get the form, for starters.
    My ex-counsellor seemed to think I'd qualify, if I could contact her when the form arrives.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    The only person that will know exactly how your conditions affect you is yourself. Even with help to fill out the forms, there's never enough of time to tell that person exactly how your conditions affect you. There's no specific wording to use, just tell it how it is without giving your life story. They will only need to know the relevant things, if it's not relevant to the descriptor then leave it out.

    I believe i posted this link previously, but here it is again my advice is to have a good read through everything and you maybe surprised what descriptors may apply to you. Just reading the descriptors as they are doesn't always help.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • cristobalcristobal Member Posts: 965 Disability Gamechanger
    @Franstrahan  I agree with Poppy, only you know whether you will qualify because only you know how your condition affects you.

    If only No 9 applies then give evidence of this, don't try to 'bend' other categories to fit if they don't...

    Be aware though that you need 8 points to get an award - so you would have to be incapable of engaging with others, even with support - to get the necessary points.

    Obviously I don't know you but it can include motivating yourself to do things such as showering, cooking getting dressed etc.

    Good luck...
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456
    @cristobal
    Thanks, both of you.
    When filling out the form are you allowed to continue on separate sheets, give as much info as possible? 
    @cristobal, it isn't that I cant engage at all socially, it's the effect it has on me and the ongoing problems that causes. This has been a lifelong problem.
    Think I have a lot of stuff in my aq50 forms that's probably relevant and would help.
    Thanks again, both of you.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Yes definitely use extra paper because there's never enough of room on the form to put everything down. Remember to put your name and NI number to everything you send.

    I'm not sure what an aq50 form is, sorry.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • chiariedschiarieds Community champion Posts: 6,896 Disability Gamechanger
    @Franstrahan - Yes, you can add more sheets....just reference the question you're continuing, & put your National Insurance number on each separate sheet. Keeping a diary has been mentioned; as I didn't have much relevant medical information, I included an 8 day diary. I kept it short, but mentioned problems I'd had as they occurred.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456 The aq50 is the forms they send out originally for the autism test. I sent a load of extra pages back with them. So can probably use a lot of the stuff from those pages in this claim, shortened down a lot.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Ah thanks for that. My daughter went through the ASD assessment fairly recently but can't remember the name of the forms or anything that i filled in.

    If you have a copy of the ASD assessment report then that will be a good thing to send as evidence. My daughters reports goes into a huge amount of detail, which is very relevant to quite a few of the PIP descriptors, for her at least.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456 Great I might well have everything I need right here then!
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @chiarieds
    That's a good idea, the 8 day diary. I'll do that. Thanks for that.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @ilovecats
    Somebody on the phone advised me to do that this morning.
    It's ok, I've been put straight since then, thankfully.
    If I had a quid for all the bad advice I've followed in life, I'd be rich by now!
    Thank you
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    Just been advised by someone else in an email from another organisation to do the PIP claim thing as if I was having my worse day.
    I'm going to stick with the advice I have from all you lot however.
    But that advice is obviously out there.
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    Terrible advice and could potentially be seen as benefit fraud, if all your days aren't your worst days.
    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    @poppy123456
    I have followed a lot of bad advice from individuals I have trusted. At least here on the forum enough people jumped on what I posted immediately to let me know it was not a good idea! So glad for this forum.
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