Hi, my name is millyrose7! — Scope | Disability forum
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Hi, my name is millyrose7!

millyrose7 Member Posts: 1 Listener
I'm when I was 20 I fainted at a disco I was diagnosed of having epilepsy and started on medication I started having seizures so I went back to see the specialist who gave me more drugs as well as having seizures I was very poorly I was having upto 300 seizures a month for nearly ten years was toxic from the drugs I was on housebound for nearly ten years and told not to have a family in 1990 I was informed I hadn't got epilepsy it was the medication inducing seizures I had been misdiagnosed this was a shock I didn't do anything at first but then started legal proceedings this was to no avail my records went missing there was never any evidence of epilepsy the report the specialist received sed not diagnostic of epilepsy in 2002 I was diagnosed with fibromyalgia which has gradually progressed this has come from the trauma of misdiagnosis three years ago it came to light i have brain damage and ptsd my memory has been affected really badly and I forget things I'm now unable to walk due to fibro I'm in constant pain 247 I'm never going to be pain free as my central nervous system has been damaged I also suffer from sever depression because of misdiagnosis Ii still hurtvery never being a mum I believe the expert on my case who wouldn't say the they had been negligent has lied in court on another case no one not even my parents knows how this has affected me I've suffered 35 years in total  my parents are both poorly I can't physically help them but I do give emotional support I have no other family I'm near breaking point 


  • chiarieds
    chiarieds Member Posts: 12,426 Disability Gamechanger
    Hi @millyrose7 - Welcome to the community. I am very sorry indeed to read all that you have gone through.
    Do you have any help for your mental health at the moment?
    It seems like your parents need physical help, which you are now unable to give, is that correct?
    If you would answer these questions then we may be able to advise better, thank you.
  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @millyrose7

    Welcome it’s great to meet you this afternoon ???

    I’m one off the team (Community Champion’s) here at Scope.


    You have had a “right rough time”

    I’m very very sorry to hear about your struggles to date.

    Yes I have had to fight for my “treatment” since 1998 following my Stroke at the age off 32.

    I have also got “brain damage” which effects everything that I do 24/7.

    Please please come back to me if you need any help/support?????


  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,555 Disability Gamechanger
    Hi @millyrose7 and a very warm welcome to the community! I'm so sorry to hear that a misdiagnosis has led to so many other complications. Please do let us know if there is anything we can do to support you through this.

    Have you had any support for your PTSD and chronic pain? 


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