Invisible impairments
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Has anyone tried LDN (low dose naltrexone) for their fibromyalgia?

Nancy8597Nancy8597 Member Posts: 4 Listener
It seems that there is so much written on the topic of LDN as a treatment for fibromyalgia and that it has helped a lot of people.  Has anyone on this forum tried it with any success?  Please let me know!

If you haven't heard of it, this article speaks about it and gives a lot of information

Thanks everyone!


  • brujah81brujah81 Member Posts: 56 Courageous
    Hello i have been prescribed LDN but i am due to start on Saturday.. have you started yet?
  • pollyanna1052pollyanna1052 Member Posts: 2,032 Disability Gamechanger
    Hi some years ago, I was using the MS support group and there was a lot of talk about LDN helping with a variety of issues eg bladder urgency, poor sleep, pain. It wasn`t available generally, but a private prescription was available if your neuro or MS nurse wrote a letter agreeing for MSers to use it.

    I did this. It cost around £21 a month...cant recall for was obtained from one place only....a pharmacy in Scotland.

    So, I tried it. It calmed my bladder and helped me sleep better. But the advantages were short lived..just a few weeks, so I stopped it.

    I have no knowledge of it helping with fibro.

    Are you getting on from your neuro or GP on scripts? Hope it helps x
  • brujah81brujah81 Member Posts: 56 Courageous
    I am getting it on script from my GP which is lucky because from what i understand not many people can get it from theirs.
    It is suppost to help Fibro.. well its in the list of conditions it can help.. that and ME which i also have. I am due to start shortly.. the goal posts moved slightly and its due to start on Monday or Tuesday

    Kelly x
  • pollyanna1052pollyanna1052 Member Posts: 2,032 Disability Gamechanger
Sign in or join us to comment.