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In receipt of standard rate mobilty and living , has gotten worse should I report worsening?

gezgez Member Posts: 1 Listener
hi, everyone.   I received PIP for a year in 2016 , when my condition got worse.  I reported it with the result that I lost it all.    i appealed , after a lot of heart ache, and got to court. I won , with the court saying that DWP had grossly underestimated and judged my various conditions and granted me the standard living and mobility rate for 10 years (till 2028).   In january last year i had openheart surgery which went very wrong.  I got sepsis, kidney failure , collapsed lung , had to be reopened and ended up after more heart failures, and got a pacemaker in the end.  After a few months of recovery, i noticed that my legs or mobility condition (chronic compartment syndrome) was getting worse and I can not walk more than 5 metres without pain and having to stop. I saw the specialist from bristol in january and he confirmed that the condition was worse now. He also could understand that after so many severe operations last year, that I did not want to have another very difficult dangerous operation.  He can not do anything about this without a big operation.  I am a lot less mobile now compared to 2018.  I am scared and don't know what to do. I am less able to leave the house since april/may 2019.   Should I report this and lose everything again? even though the court granted it me till 2028?   I have a blue badge, should i just be happy with that?   Anybody has simular or any advice for me.   Thanks  Gez


  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI and welcome,

    PIP isn't awarded based on a diagnosis, it's how those conditions affect your ability to carry out daily activity based on the PIP descriptors. As you know there's a risk reporting a change of circumstances and a worsening of condition doesn't automatically mean you'll receive more points.

    As you have an award for at least another 8 years then that's an awful lot to lose, if the decision didn't go in your favour. If the award did stay the same, you may not have the long length award you already have. An 8 year award for you means more than £25,000 in PIP payments.

    In my opinion, you need expert face to face advice from an agency near you before reporting any changes because no one can tell you on an internet forum whether there's any risks to your current award, especially because you were award this by a Tribunal. See link for what's available local to you. https://advicelocal.uk/

    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Welcome to the community @gez, please do let us know how you get on and if we can do anything else to help. :)

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