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How can wheelchairs be redesigned for children? (Survey for PhD)

Hi there,
My name is Peter Wright. I am Studying for PhD at the University of Liverpool into the future design of Pediatric Wheelchairs.
I need advice from people who look after children with CP or from children themselves onto what are the biggest challenges they face from day to day. My goal is to improve children with disability's ability to play and socialize the way non-disabled children are able to.
I am specifically interested in how their ability to play is affected. Free play is vital to a child's cognitive and social development. What could be changed and what isn't good enough with current wheelchairs, any advice would be greatly appreciated.
For this to happen, both carers and parents need to feel safe and secure that their child is going to be okay without supervision. With current technologies used, it may not be 100% possible for the parent or carer to feel safe doing this.
I was wondering, what are the main reasons parents are skeptical to let their child play freely? Is it all safety concerns? Concerns of acceptance of their peers? Lack of trust in technology? Any others? Any comments would be appreciated.
Any tips or advice you may have would be very welcome. I want to know what specifically inhibits disabled children to join in, what they miss out on the most, what improvements could be made.
Kind regards,
Peter Wright
My name is Peter Wright. I am Studying for PhD at the University of Liverpool into the future design of Pediatric Wheelchairs.
I need advice from people who look after children with CP or from children themselves onto what are the biggest challenges they face from day to day. My goal is to improve children with disability's ability to play and socialize the way non-disabled children are able to.
I am specifically interested in how their ability to play is affected. Free play is vital to a child's cognitive and social development. What could be changed and what isn't good enough with current wheelchairs, any advice would be greatly appreciated.
Parents
One area I am particularly interested in is designing a chair that allows a disabled child much more opportunity to play freely, without structure, and with other children.For this to happen, both carers and parents need to feel safe and secure that their child is going to be okay without supervision. With current technologies used, it may not be 100% possible for the parent or carer to feel safe doing this.
I was wondering, what are the main reasons parents are skeptical to let their child play freely? Is it all safety concerns? Concerns of acceptance of their peers? Lack of trust in technology? Any others? Any comments would be appreciated.
What specifically inhibits disabled children to join in?
I hope to design a smart wheelchair system that will allow disabled children to have just as much independence and development in their early years, as able-bodied children do.Any tips or advice you may have would be very welcome. I want to know what specifically inhibits disabled children to join in, what they miss out on the most, what improvements could be made.
Kind regards,
Peter Wright
Replies
It very much depends on the type of CP and the mobility of the child as you probably already know.
As a child, the only free play I had in my wheelchair would be when a tray was attached. One side effect of the tray would be that my movement was restricted even further.
Specialist Information Officer - Cerebral Palsy
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I am particularly interested in children from the age of 0-5 and the lack of independence that comes with being wheelchair-bound. It may be difficult for you to remember, but was it rare for you to be able to explore on your own, without supervision or concern from your therapist or parents?
Was it a problem for you to be at different levels to other children? Particularly when young children are playing on the floor, it must have been difficult for you to join in? Did you feel excluded from certain situations?
Thank you again,
Pete.
Playing on the floor was also difficult, I suppose it made me realise that I was different at an early age. I'm not sure that I had any concept of exclusion at that point.
Specialist Information Officer - Cerebral Palsy
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This sounds like such an interesting project!
I noticed you have posted various versions around the community. I have tried to combine this into one post as research is only allowed within one section of the forum. If you would like me to alter it in anyway then please do let me know.
I wish you the very best of luck with this and it would be great to hear the findings!
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I am currently looking for responses to my survey regarding how wheelchairs affect the lives of children. My Ph.D. focusses on trying to make play more accessible for young disabled children who use wheelchairs, doing so by hopefully designing the next generation of pediatric wheelchairs, using technologies such as automation and machine learning.
It would be great to get any feedback. Attached below is the link to the survey.
https://docs.google.com/forms/d/1SozpTah8Yj0fLXaNNWzwas5eHUBTxIACd6EXrhDanzM/edit
Cheers,
Pete