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PARENTS FIGHT to DIAGNOSE WHILST your CHILDREN ARE CHILDREN! !

RiverSongRiverSong Member Posts: 1 Listener
in Autism and Aspergers
Hi I'm River Song,

At 29, I'm finally going through the assessment stage for diagnosis and have 3 different ones on the table. High Functioning Autism, ADHD, and Sensory Processing Disorder. Going for further testing to figure out which ones are going to be most helpful for my life. 

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  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    Unfortunately I dont think too much was known re ASD when my parents were often getting called up to the school for talks with the headmistress because of their unruly child.
    But yes I would say to any parent now, fight tooth and nail, and insist on that diagnosis.
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  • 66Mustang66Mustang Community Co-Production Group Posts: 4,668 Disability Gamechanger
    I agree I was diagnosed with it as a child and they said I was lucky as it is harder to get diagnosed as an adult.

    I don’t really know what a diagnosis does aside from confirm what you have, though. It doesn’t unlock access to special treatment or medicines, at least it didn’t for me.
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  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    HI and welcome,

    I'm one of the community champions here on scope.

    My daughter was diagnosed with ASD when she was 17, she's 19 now. Did it make any difference to her..... no, absolutely not. Although a diagnosis does help you know what's wrong, it doesn't help with anything else. You're still the same person you were before the diagnosis.
    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
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  • FranstrahanFranstrahan Member Posts: 898 Pioneering
    I guess it just helps to have the diagnosis while you're still a kid just so you know what the problem with you is, and can tell others. Not leaving them searching for 'labels' such as unruly etc while a child, progressing to slightly more aggressive stuff as you grow up such as 'weird', 'not normal' 'alcoholic' 'lesbian' etc. Which in turn leads to them just blanking you out from society/community.
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  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @RiverSong, great to have you with us! How are you doing? :)
    Community Partner
    Scope

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  • April2018momApril2018mom Posts: 2,869 Member
    Welcome to the community @RiverSong. What are your hobbies and interests? 
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  • dolfrogdolfrog Member Posts: 440 Pioneering
    RiverSong said:
    Hi I'm River Song,

    At 29, I'm finally going through the assessment stage for diagnosis and have 3 different ones on the table. High Functioning Autism, ADHD, and Sensory Processing Disorder. Going for further testing to figure out which ones are going to be most helpful for my life. 

    I was diagnosed as having Auditory Processing Disorder in my late 40s, which explained my life long issues. I was asked to help the UK Medical Research Council regarding their 2004-2009 Auditory Processing Disorder research program. They asked me to set up and run a a support organisation for those diagnosd as having auditory processing disorder. during this time i discovered that i could read research papers, which the researchers often sent me.
    since then i have compiled many research paper collections relating to many invisible disabilities including autism, ADHD and Sensory Processing Disorder. They are based at PubMed whicb allows you to create your own online research paper collections. You may find these three research paper collections of some interest.
    Autism 
    https://www.ncbi.nlm.nih.gov/sites/myncbi/1v9jzpUc5t6/collections/10371460/public/  
    Attention Deficit Hyperactivity Disorder (ADHD) 
    https://www.ncbi.nlm.nih.gov/sites/myncbi/1v9jzpUc5t6/collections/10362498/public/  
    Sensory Processing Disorder (SPD) 
    https://www.ncbi.nlm.nih.gov/sites/myncbi/1v9jzpUc5t6/collections/10634081/public/  

    I hope you find them useful

     
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