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Hi, my name is Carly40!

Need advice please. I was on PIP and on ESA currently but they sent me a reassessment booklet for PIP to fill in and invited me to a face to face interview. I suffer from severe bowel problems have an ileostomy bag and have had 7 surgeries on my bowel, the last one being in Jan 2019 I was rushed in as an emergency and nearly died. As a result of all my surgeries I have short bowel syndrome abdominal adhesions I'm on morphine daily for pain and in the future been told I might not be able to eat and have to go on TPN feeding due to my bowel being badly damaged. I also suffer from bladder weakness as a result of the surgeries and receiving treatment for this and I suffer from severe depression and on antidepressants. My bag leaks all the time have to change my clothes 4 times a day and my bedding die to leaks and my stoma is non stop pouring out liquid due to how little bowel I have left. After my surgery in jan 2019 I was in hospital from jan to april recovering from emergency life saving bowel surgery. My assessor gave me 2 points in total for whole assessment and those 2 points were for toileting needs. I have put in a MRN and I'm going to appeal and go see my MP and get letters from my GP and consultant. Is there any advice you could give me moving forward? Thanks
Replies
Thank you for joining and sharing.
Sorry to hear what you are going through.
We are a supportive community, friendly care and concern. Offer compassion, empathy and sensitivity.
I am one of the team of Community Champions. We support, advise and offer guidance to members.
Please if I can offer the following information and advice.
This organisation may be able to help with your condition you have . Informative and useful website.
https://www.bladderandbowel.org.
General Helpline 01926 357 220
Please can I also suggest speaking to mental health charities.
Offer advice , support on a number of issues and are very useful, helpful in situations like this. With benefits.
Form filling in, assessments. Offer health advice, well being and looking at floating support to maintain and guide you with your mental health.
Accept clientele with other conditions and disabilities as well mental health. Signposting to relevant support with the in the charities or outside sources, worth thinking about.
I have used all three and have helped me a lot.
https://www.richmondfellowship.org.uk.
https://www.mind.org.uk.
https://www.rethink.org
Might not be in all areas. You can self refer or speak to your GP.
I am also going to tag my friend @poppy123456 member of our team see if anything else on benefits can advise on.
Lady has exceptional knowledge on benefits anything to advise you on.
Please if I can help with anything have diet, nutritional qualifications could be useful for any advice,. One other have you contacted your Community Health Unit. Your local County Council
They have a wellbeing service . I used them after addiction. Helped me to adjust and cope with my health.
One to one support, lots of information relevant to health.
Please take care if you have any questions please ask you not alone.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
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