Coffee lounge
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

28 year old with CP sensory loss doesn’t understand isolation and bored

gailstylesgailstyles Member Posts: 2 Listener
edited March 2020 in Coffee lounge
I have a 28 year old daughter who is living in a care home 15 mins away from me, I see her regularly, she is quadriplegic with CP and profoundly deaf and of course is now in lock down for 12 weeks ,  I am not allowed to visit or take her out. She likes to be active and loves to be out and about. She doesn’t understand why she has been stuck indoors for 7 days and it’s not possible to explain to her why this is happening. I face time her with the help of a carer and yesterday she looked so fed up and bored. The carers are finding it hard to entertain her after exhausting every activity she enjoys and this is only week 1. I worry for her mental health I think all this will have a profound effect on her.  I just wondered if anybody else is in a similar situation ? 


  • Abdi_ScopeAbdi_Scope Scope Posts: 234 Pioneering

    Hi @gailstyles I can only imagine the frustrations you and your daughter are facing at the moment. The situations seems to be changing day by day. What activities does she normally enjoy doing, what are her interests?

    Maybe ones in the community will be able expand on your daughters likes. 

    Thank you for reaching out and we are here as a group to help and support each other at this difficult and challenging time.

  • Richard_ScopeRichard_Scope Posts: 2,725

    Scope community team

    Hi @gailstyles, welcome to the community.
    I can only imagine how worrying and frustrating the situation is for you and your daughter. Could I ask, what method of communication does your daughter use?  

    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
Sign in or join us to comment.