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Pip and EPILEPSY

Hi I have recently applied for pip April 1 I just wandered if anyone had any experience with the dwp with the illness. I have provided them with plenty of correspondence from hospital discharge letters to consultants letters . I have filled the form truthfully and to the best of my kniwkedge, but it's hard to explain on a form that seizures tonic clinic are a danger to you whatever you are doing. The form is not really designed to take into account safety. I know about the legislation that was made about tasks and risks and safety. But I still think that the form is hard to fill out.
Replies
Also likewise with the neighbor thing, the tribunal asked me about my move into social housing where I've been now for 18+ months and 'so have you spoken to / know your neighbor?'. I've been here over 18 months and don't even know her name, and the only interaction I have is she says hi to me when I'm putting my bin out or anything else, and when I try to say hi back my lips move but no words come out (story of my life). This has happened since people tried greeting me when I was at university. I'd imagine people think I'm mute which wouldn't even be too incorrect, I have a lot of hearing loss as well.
One of my favourite phrases is " the risk and constant reallity of seizures" but I have a number of absences every day and grand mal seizures 3 or more times a week.
Having said that I really hope you gain better control of your epilepsy, my wife's is severe but we have a care support package from our Adult Social Care, they have helped us in the past with PIP and DLA in the past & have been brilliant.
Paul
Paul
The partials have generalised
There is very little knowledge about the impact of partial seizures. But over time they can have a dramatic impact on memory and mood. As well as the safety aspect, if you have either of the other issues from clusters/partials.., you may have other issues that are by proxy of the epilepsy. Like mood and memory.
I receive PIP.xxx
It’s standard to get 2 points for cooking, 2 points for bathing. If you have uncontrollable epilepsy which reading above it appears you do...those points have to be given, I know this as I was the first person to go to a tribunal after the change in case law. If you have seizures, it doesn’t need to happen 50% of the time. It could happen only once a year... an the consequences of that can be catastrophic. So they decided, the greater the potential harm, the less the likely it would need to occur on any given occasion.
I got 1 point for prompting with meds (I have temporal lobe epilepsy, so my memory is crap). I got 2 points for engaging with others, memory plays a huge part, but so does medication. I am not as talkative on medication, it’s an effort. Sometimes I sound funny
I went for an MR as I wanted points for complex budgeting decisions (memory), they refused it and I asked to go to tribunal, awarded the points 2 days after asking for a tribunal, which is rare. Fight it, trust me.xxx
Scope
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