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Chiari Malformation PIP fail

Hello I have suffered greatly with Chiari for nearly 3 years and feel like I have not been taken seriously by health professionals and even declined PIP. I suffer with pain severe pain, migraine, numbness and pins and needles in my limbs, blurred vision and dizziness and require a lot of help from family. I used to work as a nurse, but due to this illness I am home as a single parent struggling financially.
Does anyone know of any organisations or support groups that can help with my PIP claim please, as I am lost and considering appealing to a tribunal.
Does anyone know of any organisations or support groups that can help with my PIP claim please, as I am lost and considering appealing to a tribunal.
Replies
The best approach to getting PIP is to put aside your specific condition, because most people feel the DWP or healthcare professional don’t understand their condition whereas in fact DWP don’t need to know, and then forget your symptoms.
Its crazy to think that now I’m on the other side and I’m submitting evidence to prove the point system which I know so well and still being refused. I’m now realising how crazy and frustrating this system is even when you submit the legit information! I’ve already had mandatory reconsideration but will now have to go forward to a tribunal.
My GP has also been unhelpful but I will go back again and try and get him to write a specific letter according to the points system.
I’d also say, hard as it is, put aside what you learnt as a HCP. It was based on DWP guidance rather than the law and much of that guidance was and remains fundamentally incorrect. You will get yourself into a fair old mess if you follow DWP guidance or the relatively limited training as a HCP.
We did have someone on here who was also a HCP. They persisted in telling people what a HCP would do in situation x and didn’t take kindly to being told their interpretation of the law bore no relationship to the law at all in several instances e.g. around safety or reliability. Ended badly when they became an active HCP again and not only didn’t really tell everybody on here but also denied their was any guidance about their presence on social media as an active HCP. There is of course tonnes of it from DWP, assessment providers and their professional bodies.
Anyway, I digress. Focus yourself away from what you were trained on and instead start with places like Benefits and Work or like https://pipinfo.net/.