Daughter with CP has been awarded lower rate DLA — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Daughter with CP has been awarded lower rate DLA

imran83
imran83 Member Posts: 2 Listener
edited June 2020 in PIP, DLA, and AA
Hi all, hope everyone is well. I am new to this community. I recently applied for dla for my 3 year old daughter. She has been diagnosed with cerebral palsy/Hemiplegia. She needs care during the day and at night which was explained on the form. And can only walk around 5metres before being in discomfort and starting to fall. We provided medical evidence from her therapists and her pediatrician. 

She has been awarded the lower rate of care, which I think is incorrect. Any advice would be great. 

Sorry for the long initial message. 

Comments

  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @imran83

    Good Morning & Welcome to our Community.

    I am one off the Community Champion’s here at Scope.

    We have got some info/advice on here:

    https://www.scope.org.uk/advice-and-support/disability-living-allowance-dla/

    Please please let me know if you need any help going through this info???

    @steve51

  • Chloe_Scope
    Chloe_Scope Scope Posts: 10,565 Disability Gamechanger
    Hi @imran83, and welcome to the community!

    Have you asked for a copy of the report? This will show you how the decision was made. For example, what elements did your daughter not score that you think she is entitled to?

    If you have this information and you still don't agree, you could apply the decision. How long ago was the decision recieved.

    Hope you are safe and well, please do let us know if we can do anything else to help. :)
    Scope

  • imran83
    imran83 Member Posts: 2 Listener
    Hi chloe_scope thank you for your reply. I will ask for a copy of the report and update accordingly. The decision was received this week. Thank you again, just very disheartening when you see your child struggle and they think she does not require the extra care. 
  • janer1967
    janer1967 Member Posts: 12,211 Disability Gamechanger
    Hi @imran83 Welcome to the community I am sorry to hear about your daughters DLA claim.

    Im not an expert on childrens DLA but if it is anything like PIP once you have the decision you have 1 month to request a mandatory reconsideration. Details of this should be in the award letter.

    You need to look at where and why you disagree with the decision. MR have a low success rate and if this doesn't change the decision the next stage would be tribunal.

    I apologise now if this isn't the process for DLA but I will signpost someone else who may have more advice @mikehughescq

      
    Here to help with my experience in hunan resources and employment rights 
  • mikehughescq
    mikehughescq Member Posts: 7,437 Disability Gamechanger
    It is very hard to show that a 3 year old with CP has care needs substantially in excess of those of a healthy 3 year old. That’s what you need to focus on. Have you detailed all the care needs and can you show not just that they’re above the norm but substantially above the norm?

Brightness

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.