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Advise please for my brother
nikkiran
Member Posts: 1 Listener
Hi I am writing on here hoping to seek advise for my brother. We’ve always known him to speak slow process things slower and had a ‘diagnosis’ for speech and language impairment. I am a few years older than him and the way his is has become the norm for us- until recently. I really started to pay attention to things he does and the way he spoke and he was ‘different’ and his speech was obviously slower than other people I asked my parents what’s the official diagnosis for him and they said the doctors said he had a speech and language impairment. I contacted the doctors to find out more and they said he had ‘congenial disorder’ on his record no one in our family was ever told of anything like this and the doctor said he should have had specialist input throughout the first 18 years of his life which he never did. He is 19 in October and They said as he is over 18 we need to go through the council for a reassessment. Contacted the council and they said they do not do reassessments for those over 18 unless he’s in college (he not). We’ve always pushed him so hard at school encourage him etc as he’s failed maths English etc but he says his brain doesn’t process it and his short term memory is really poor. He had extra time and a reader in exams. We want to know how can we get him reassessed as the council and doctor has been of no use and any help we can get for him now would be something. Just annoyed at ourselves we’ve just been living ‘normal’ lives with him and not thought to have got him assessed sooner:(
Replies
Good Morning & Welcome it’s great to meet you today.
I am one of the Community Champion’s here at Scope.
Sorry to hear about your brother & his current struggles.
We have got a number of senior members & I will forward onto them.
Hi @Richard_Scope @Adrian_Scope @Chloe_Scope
Can you please offer me some help with this post??????
Many Thanks.
@steve51
Welcome to the community.
What did the doctor want the council to reassess? Has your brother ever received a formal diagnosis?
Specialist Information Officer - Cerebral Palsy
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Don't berate yourselves for not battling before, but if theres the slightest chance it's not too late, fight now, and fight as hard as you can. Other parents were better informed and knew the systems. Your brother was wrongly excluded from the adequate extra education he required, but if he gets it now, he might even yet make up for lost time. Instead of being the only one in class who has no idea what's happening, he will be learning in a way suited to his own strengths.
Some teachers do a brilliant job. But u.k. literacy is about worst in developed world, including 11%(?) still functionally illiterate and innumerate at the stage they are being given university degrees. But all teachers get paid the same scale and same generous pension and, yesterday, all including the ones who haven't lifted a finger throughout lockdown got the same pay boost, while carers who risked their lives got not one penny.
I cant really give any advice of my own but I hope other members can help and point you in the right direction. Maybe have a look round the site to see if there are any relevant groups or posts