Struggling to get a diagnosis for my almost 5 year old

Cher_Alumni

@CarlyDee

Aww I really feel for you being in this position.  It can't be easy at all and I'm so sorry you lost your dad while you were pregnant.  That must have been a real blow.

I wonder, do you have a local parents group that might be able to help you.  I know you don't have a definitive diagnosis but I'm sure you would be welcomed.  How are you today? 

poppy123456

Hi,

I'm sorry you're going through all of this. I know exactly how you're feeling as i had to fight for 14 years to get any diagnosis for my daughter. In the end she was 17 when she was finally diagnosed with ASD and a learning disability. All this was after i was told for years that "it was all in my head and i was just being an over protective mother" NOT!!

In all honesty i've never heard of them waiting until a child is 5 to have an assessment. Yes, wait until the child is at least 2 but not 5. There's a very large waiting list for these assessments right across the country and Covid19 will have only made the problem a million times worse.

I wouldn't advise contacting your local MP because i'm not sure what help they will be for this.

If it was me then i'd start with your health visitor and your son's GP. His GP can refer him for any assessment that he needs, a referral doesn't have to come from his school.

Other than this all i can say is don't give up!! I never ever gave up on my daughter, it took a lot of time, effort and a huge amount of fighting but i got there in the end.

Good luck.

Chloe_Scope

Hi @CarlyDee and a very warm welcome to the community! At this stage I don't have any further advice to give, but I just wanted to let you know that we are all behind you.