Hello all

jayramphal
jayramphal Community member Posts: 10 Listener
in Start here and say hello!
Hi everyone decided to join as I don’t know anyone who is in a similar situation as me so was hoping to find people who understand

Comments

  • leeCal
    leeCal Community member Posts: 7,537 Championing
    Hi @jayramphal welcome to the community and nice to meet you.
    best wishes.
  • jayramphal
    jayramphal Community member Posts: 10 Listener
    Thanks you to
  • jayramphal
    jayramphal Community member Posts: 10 Listener
    New to this
  • janer1967
    janer1967 Community member Posts: 21,922 Championing
    Hi and welcome to the community glad you have joined us here

    Have a look around and feel free to join in and if there is anything you want help with just ask

    You said you want to find people in same situation who understand we are all very understanding here and very friendly

    Maybe if you can tell us a bit about your situation we can point you in the right direction
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,715 Championing
    Hi @jayramphal

    It's lovely to have you here, how are you today?

    To get started in the community you can have a browse of our different groups to see if anything takes your fancy or interests you.  Otherwise you might enjoy our virtual coffee lounge where our members are playing different games and having varied discussions.

    Feel free to jump in and get involved, and if you need any help just give us a shout.  You are never alone in our community  :)
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Welcome to the community @jayramphal, glad you've joined us :) 

    Do you want to tell us a little bit about yourself?

  • jayramphal
    jayramphal Community member Posts: 10 Listener
    I have a rare brain condidion called leukodystophy as well as Aspergers syndrom 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hi @jayramphal, thanks for replying :) 

    I have to say I've not heard of leukodystrophy in the past, I hope you are getting along okay with both of those things. 

    You might find some helpful discussions over in our talk about specific conditions section, and you may also find others who have similar experiences to you. 

    If you ever need any help navigating the community don't hesitate to ask.
  • Ami2301
    Ami2301 Community member Posts: 7,879 Championing
    Welcome to the community @jayramphal :)
  • steve51
    steve51 Community member Posts: 7,122 Championing
    Hi @jayramphal

    Good Afternoon & Welcome it’s great to meet you today.

    I am one of the Community Champion’s here at Scope.

    Yes I also have rare brain condition (AVM)

    Please come back to me if you need a hand.

    @steve51


  • jayramphal
    jayramphal Community member Posts: 10 Listener
    @steve51
    Yes are there any way i can get help with funding. I am in need of an electric wheelchair



  • steve51
    steve51 Community member Posts: 7,122 Championing
    Hi @jayramphal

    Yes there is some info below for you with regards to funding.

    https://www.disability-grants.org/grants-for-wheelchairs-one.html

    https://www.scope.org.uk/advice-and-support/wheelchairs/

    Please let me know if you have any problems with these????

    @steve51
  • chiarieds
    chiarieds Community member Posts: 16,346 Championing
     Hi @jayramphal - & welcome to the community from me too. I hope the links Steve has given may help you find out more about funding. :)
  • jayramphal
    jayramphal Community member Posts: 10 Listener
    Yes thanks

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