The effect of lockdown on children with Cerebral Palsy - have your say!

bron_gavine

Hello everyone!

My name is Bronwyn Gavine -  I am a doctor and PhD student in Clinical Neurosciences. Together with a team of researchers at the Department of Clinical Neurosciences, University of Oxford we are passionate about learning about the developing brain and how we can help improve interventions for children with cerebral palsy. 

We have developed an online survey for parents and guardians of children with cerebral palsy to share their experiences of lockdown in the United Kingdom and how it affected their children with CP.  The survey (and more information) can be found here: https://is.gd/cpathome

The purpose of this study is to examine how the lockdown in the UK has impacted children with cerebral palsy. We are interested in finding out how the lockdown affected access to therapy and medical services, and if it impacted children’s ability to do certain physical tasks and activities. We are also interested in finding out how children with cerebral palsy felt during lockdown. We feel it is vital to gather as much information as possible from guardians and children with cerebral palsy, and have your voices heard. The more replies we get, the bigger the difference we can make. 

The results will be used to guide future research, and will be distributed to schools and healthcare settings in order to ensure that additional needs of children with cerebral palsy will be considered in the wake of the lockdown. 

The survey has two parts. The first part will ask a parent/guardian of a child with cerebral palsy to fill in an online survey regarding school, therapy and medical services, your child’s ability to do certain activities, their time usage and their experience of lockdown. The second part of the survey is optional and aimed at adolescents aged 10-16. We will ask them questions regarding their feelings and time usage during lockdown. Guardians can also opt to arrange online interviews, if they would prefer speaking to someone over filling in an online questionnaire. 

The research has received ethical approval from the University of Oxford (Ethics approval MSD/IDREC R71276/RE001).

The full information sheet and the survey are available at:  https://is.gd/cpathome. If you have any questions, please do not hesitate to get in touch by emailing me at bronwyn.gavine@ndcn.ox.ac.uk 

Thank you and hope to hear from you!

Bronwyn Gavine

Cher_Alumni

Good luck with your study @bron-gavine.  I've moved this over to our Events, research and opportunities discussion group so our members can spot it

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