Help bring the 'back to the front' of people's minds
What is spina bifida?The NHS outline what spina bifida is, and what affects it can have.
Spina bifida is a type of neural tube defect. The neural tube is the structure that eventually develops into the baby's brain and spinal cord.
People with spina bifida can experience:
- Weakness or total paralysis of the legs
- Bowel incontinence and urinary incontinence
- Loss of skin sensation in the legs and around the bottom
What causes spina bifida?
- Low folic acid intake during pregnancy
- Having a family history of spina bifida
- Taking certain medications
Are there any treatments for spina bifida?
Treatments for the symptoms or conditions associated with spina bifida include:
- Surgery soon after birth to close the opening in the spine and treat hydrocephalus
- Therapies to help make day-to-day life easier and improve independence, such as physiotherapy and occupational therapy
- Assistive devices and mobility equipment
- Treatments for bowel and urinary problems
It can be a challenging condition to live with, but many adults with spina bifida are able to lead independent and fulfilling lives.
What would people with spina bifida tell their younger selves?
Shine, a charity providing information and advice about spina bifida and hydrocephalus to individuals, families and carers, are inviting adults with spina bifida to share what they would tell their younger selves. You can watch some of the videos here on their website.
Will you go 'Back to Front'?Shine would like members and supporters to get involved in Spina Bifida Awareness Week by going Back to Front', to help them raise funds and bring the 'back to the front' of people’s minds.
Dressing back to front in your clothes is a fun and simple way to raise money and awareness. You could get your club, school, or workplace involved too!
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