Concerned about another member's safety or wellbeing? Find out how to let us know.
Dad has rare form of Melanoma
Morning. Apologies in advance for the long post. I don't know if this is the right place to post this. My dad has recently been diagnosed with a rare form of Melanoma. After having a blood test,3 X-rays,a chest CT Scan,an ebus and a CT Scan of his head,he's been diagnosed with Melanoma,Stage 4 which has spread to both lungs,surrounding lymph nodes and part of his brain. He saw the oncologist on the 13th of this month and started targeted therapy on the 21st of this month. He takes Dabrafenib and Trameinifib. He's also having to inject every evening up until March next year to try to disperse a blood clot on the lung,as well as taking oral blood thinners. He's had to give up driving after 60 years. He's tired,feels weak,feels sick,fed up and has no appetite. I coax him to eat a bit. Some days are better than others. He says that even food commercials put him off food. I'm concerned because he says he feels weak and shaky and he's starting to lose weight. I don't want to nag him though. I think he may be depressed as well. I don't know what to do. I help out round the house and mum and I remind him to take his meds and I leave water out for him to try to keep him hydrated. It's so upsetting to see and stressful. He's lost all interest in things. I can't drive so i can't take him out. He only gets out for appointments or when my sister comes over once a week,she drives. They go out in the car with her,(wearing a mask). I feel helpless watching my dad go through this. I feel anxious,scared,worried and sad, and living with parents who are both vulnerable during Coronavirus,(mum's type 2 diabetic and injects twice a day and has osteoarthritis of the spine),is very worrying. I have depression,anxiety and ocd and feel sad and tense most days. The only time I feel relaxed is when I'm watching the TV in the evenings or when I see a mate,(wearing a mask and keeping my distance when taking it off to have a mug of tea or squash(take my own mug with me),then put my mask back on. If I need the toilet at theirs,I use kitchen roll that's in my bag to dry my hands with and i turn the tap off with my elbow,then sanitise my hands afterwards as well. when I get home, I dispose of my face mask in the bin,then wash my hands. I wear a face mask when going for a walk as well. I wash my hands after putting the rubbish out and use my elbow to open the front door with. I wipe down surfaces after receiving the food shopping delivery,then wash my hands. I check use by dates on their food. I wash my hands before helping mum with lunch or dinner. I change the towels in the kitchen, toilet and bathroom regularly. I try to be as careful as I can. Any advice would be most welcome please. Thank you.
- 48.4K All Categories
- 9.6K Start here and say hello!
- 3.9K Coffee lounge
- 3.9K Disability rights and campaigning
- 1.4K News and opportunities
- 134 Community updates
- 11.3K Talk about your situation
- 1.6K Children, parents, and families
- 619 Work and employment
- 516 Education
- 939 Housing, transport, and independent living
- 906 Aids, adaptations, and equipment
- 237 Dating, sex, and relationships
- 245 Exercise and accessible facilities
- 19.1K Talk about money
- 1.7K Benefits and financial support
- 4.2K Employment and Support Allowance (ESA)
- 11.2K PIP, DLA, and AA
- 1.9K Universal Credit (UC)
- 3.5K Talk about your impairment
- 1.2K Cerebral palsy
- 577 Chronic pain and pain management
- 636 Rare, invisible, and undiagnosed conditions
- 688 Autism and neurodiversity
- 819 Mental health and wellbeing
- 283 Sensory impairments
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.