New to the group and just had the biggest shock! — Scope | Disability forum
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New to the group and just had the biggest shock!

swinka27
swinka27 Member Posts: 1 Listener
edited January 2021 in Start here and say hello!
Hi everyone I am swinka27 and I joined today to get some support. I just turned 51 a few days ago. Today I got access to my medical record for the first time and I learned that I was born with Congenital Cerebral Palsy. Neither my mum nor I were ever informed about this but I have had many health problems that can now be understood.  However, the fact that I have been unaware of this diagnosis for so long is a huge shock to both me and my mum!!! Not really sure how to feel about it all. 

Comments

  • janer1967
    janer1967 Member Posts: 16,324 Disability Gamechanger
    Hi and welcome 

    That must have been a big shock and I'm very surprised this hadn't been discussed with you or your mum 

    We have lots of CP members here and even a meeting group and specialist advisers 

    Have a look around the site we are here to support you anyway we can 
  • Cher_Inactive
    Cher_Inactive Posts: 4,400 Scope online community team
    Hello @swinka27 and welcome to our community.

    Blimey what a shock, and equally a relief to have an answer for your symptoms.  I imagine it will take some time to get your head around the diagnosis but you have definitely come to the right place for support :) 

    We have a Cerebral palsy discussion board where people share their stories which might resonate with some of your experiences.  

    While we also have a fortnightly CP online cafe where our members get together for a natter.  

    Our resident Cerebral palsy specialist information officer @Richard_Scope is a great contact should you have any particular questions, so please do let us know if there's anything you are worried about or want to know.

    It's great to meet you and hope to speak soon.
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  • Richard_Scope
    Richard_Scope Posts: 3,176 Scope online community team
    Hi @swinka27
    Good to meet you.
    It must have been a huge shock for you. If you need to chat let me know. 
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • Ross_Scope
    Ross_Scope Posts: 7,436 Scope online community team
    Hello @swinka27 and welcome :) 

    As the others have said, that must have been quite a shock to discover after all these years, I hope you're coping okay. 
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  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,477 Disability Gamechanger
    Hi @swinka2 - & welcome to this friendly & supportive community from me too. Any time you want to chat, you'll find there's nearly always someone here to listen, so I'm pleased you've joined. :)
  • MPowell_1991
    MPowell_1991 Member Posts: 28 Connected
    Wow, you must be experiencing a whole mix of emotions, but please know, you're never alone. I'm sure that we'll all gather around you should you need. Take time to process things. Much love.

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