Hi, im julesmonroe1972! Why has my sons EHCP been taken away? — Scope | Disability forum
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Hi, im julesmonroe1972! Why has my sons EHCP been taken away?

julesmonroe1972 Member Posts: 2 Listener
edited January 2021 in Education
My son is under 3 hospitals awaiting formal diagnosis and his school have taken his EHCP away he is 9 went to specialist nursery then mainstream with a speech and language unit on site


  • poppy123456
    poppy123456 Member Posts: 31,186 Disability Gamechanger
    HI and welcome.

    Why have the school taken his EHCP away? Have they given a reason for this. It wouldn't have been the school that did this, it would be your local Authority (LA) The 2 reasons that this could happen is that the level of support is no longer needed or your LA is no longer responsible for the child.
  • julesmonroe1972
    julesmonroe1972 Member Posts: 2 Listener
    Hi poppy the school have said previously that he is doing really well, he was non verbal till 4.5 years and now he has full speech, but I thought because it’s a Heath and education plan and him still being under 3 hospitals waiting for someone to spend their pot of gold in a formal diagnosis, he was having seizures till he was 6.5years and that’s all the hospital were interested in now I’ve finally managed to get him seen by Cahms and then this!? 
  • poppy123456
    poppy123456 Member Posts: 31,186 Disability Gamechanger
    edited January 2021
    That's a really good thing that he has improved.

    It could be that the level of support indicated in the EHCP is no longer needed. Or that no support is needed at all. They won't just removed the EHCP completely without good reason and they should have contacted you because there's procedure they must follow before stopping the ECHP.  I'd advise you to contact your LA to ask exactly what's happening and hopefully they will be able to tell you.

  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,478 Disability Gamechanger
    Hi @julesmonroe1972 - I just wanted to welcome you to the community as I see Poppy has already given you a helpful link. Please do let us know how you get on, & if we can support you in any other way. :)
  • Cher_Inactive
    Cher_Inactive Posts: 4,400 Scope online community team
    Hello @julesmonroe1972 and welcome to our online community.

    I can understand your frustration, having felt like you were getting somewhere for it to be taken away  :(  I'd recommend reading the IPSEA link @poppy123456 left you and I hope you have some joy in talking with the LA.

    Please keep us updated with how you get on.  Also, I've moved this post to our Education and learning discussion category and slightly changed the title, just to help others spot your post.  
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