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Hello, I need some advice please, my 16 year old grandson has been diagnosed with Marfan, he has a video consultation with a heart specialist in early February, he has curvature of the spine and an indentation in his rib cage, letter received today from this specialist says he may have to wear a brace for six months or perhaps he will need surgery to insert rods into his chest, we are still reeling with the news he has this, ok, he’s very tall and thin, but never suspected anything wrong. The reason I am posting this is because the letter says her mother, my daughter is responsible for paying the 20k for surgery, this news on top of everything else is too much to bear, we don’t have that kind of money, she... my daughter has been told her current work contract will not be renewed in April so how on earth do we fund this?