Hi, my name is shazer0307!

shazer0307
shazer0307 Online Community Member Posts: 18 Listener
Hi everyone my name is Sharon and I am a ms sufferer.I was told about this community and thought yeah why not so here I am.

Comments

  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome on board nice to have you with us 

    Have a look around and feel free to join in 

    Our coffee lounge is good place to start or the recent discussions 

    I look forward to seeing you about 
  • shazer0307
    shazer0307 Online Community Member Posts: 18 Listener
    Thank you.
  • chiarieds
    chiarieds Online Community Member Posts: 16,688 Championing
    Hi @shazer0307 - welcome to the community & thank you for joining. Please join in with any discussions of interest, as well as pop into our virtual 'Coffee lounge.' I hope you enjoy being part of the community. :)
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hi @shazer0307

    Welcome to the community and thanks for introducing yourself. 

    I hope you manage to find your way around the community okay, a good place to start is always the virtual coffee lounge where we do things like play games :) 
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Welcome to the community @shazer0307 :)
  • Tom70
    Tom70 Online Community Member Posts: 39 Connected
    Hi, I’m new as well!
  • scootergirly
    scootergirly Online Community Member Posts: 18 Connected
    Hi I’m new aswel originally diagnosed ms six years ago but rediagnosed neurosarcoidosis but have friends with ms as I went to ms support group 
  • shazer0307
    shazer0307 Online Community Member Posts: 18 Listener
    Hi, my friend I've had ms since 2011 took ages for them to decide that's what it was as it was not the usual case of ms. They described it as an aggressive explosive form of ms hence me being in hospital for 3 MTs and then in a neurological hospital for 6 mts. My poor husband had to deal with 3 children and hold down his job.he is my full time carer now but not out of choice of course who knows where life will take you hey.
  • scootergirly
    scootergirly Online Community Member Posts: 18 Connected
    You had it rough I had what drs thought was a stroke then after mri I was sent for lumbar punctures then diagnosed ppms after several hospital trips and iv steroids the ms specialist didn’t think it was sent me to London specialist who didn’t think it was fast forward a year now diagnosed neursarcoidosis and on medication can’t walk far now
    i also left partner with three kids to care for luckily teenagers now and hubby is able to go to work x
  • shazer0307
    shazer0307 Online Community Member Posts: 18 Listener
    Sure did lumber punctures too, please note my husband replays to most of my posts on my behalf because of my memory and cognitive issues please don't let this put u off. Could your partner/ husband not be your full time carer?
  • scootergirly
    scootergirly Online Community Member Posts: 18 Connected
    He’d go stir crazy if he didn’t work full time I’ve been shielding as am clinically extremely vulnerable but he has still worked 
  • shazer0307
    shazer0307 Online Community Member Posts: 18 Listener
    Married?
  • scootergirly
    scootergirly Online Community Member Posts: 18 Connected
    Didn’t see point been together nearly 30 years 
  • shazer0307
    shazer0307 Online Community Member Posts: 18 Listener
    Yeah see your point.