Hi, my name is marybottomley! I don't feel like I fit in the hearing or deaf world.

marybottomley

Hello 

Ross_Alumni

Hello @marybottomley

Welcome to the community, how are you? 

marybottomley

Struggling 

chiarieds

Hello @marybottomley - Welcome to this friendly & supportive community. How are you today?

janer1967

Hi and welcome on board glad you have joined 
Sorry to hear you are struggling is there anything we can help you with 

marybottomley

Don’t know I feel like I don’t fit the hearing world or the deaf world

janer1967

These are quite a few hearing impaired members on here who maybe you can connect with and we have a section for this too 

Do you have any hearing aids or support at all 

marybottomley

I have hearing aids but I hate wearing because they make one of my other conditions worse I suffer with quite few conditions which makes things complicated 

janer1967

I'm sorry to hear that there are lots different types out there maybe worth looking into 

My mum went to a private clinic for hers however they were very expensive 

marybottomley

We can’t afford private ones

janer1967

Sorry about that hope other members can offer you some more practical advice 

Tori_Scope

Welcome to the community I'm sorry to hear that too @marybottomley. What specifically do you feel stops you from being fully part of the 'hearing world' and the 'deaf world'? Have you spoken to a specialist about not always being able to wear your hearing aids? 

Just to let you know, I've moved your post into the visual and hearing impairments category.

dolfrog

marybottomley said:

I have hearing aids but I hate wearing because they make one of my other conditions worse I suffer with quite few conditions which makes things complicated 

Sorry for the late reply.
There can be more issues than just hearing loss which can all be part of Audiology, such as Misaphonia, Hyperacusis, Auditory Processing Disorder, and many more related issues.
Hearing aids only help with hearing loss, and not with most other areas of audiology, where they can make experiences worse or provide no help at all. 
You could have a look at some of my PubMed Audiology Research paper collections which may help explain issues.

Some PubMed Audiology Research Papers Collections 

https://www.evernote.com/shard/s329/sh/1d516363-55b1-43c0-ba6c-e40667b946ad/e5b8c6ade64471065704b188b20e2bd4 

marybottomley

Thank you for the information but I find it hard to read
i aLao have ptsd and end as well

dolfrog

marybottomley said:

Thank you for the information but I find it hard to read
i aLao have ptsd and end as well

I hope that these issue specific research papers are easier to read.
regarding Misaphonia and hyperacusis (sensitivity to sound)
Insights from the Third International Conference on Hyperacusis: Causes, Evaluation, Diagnosis, and Treatment

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6122267/  

 and Temporal type of Auditory Processing  (how the brain processes the sounds the ears hear.)

Auditory temporal resolution in adaptive tasks. Gap detection investigation 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6452600/ 

I hope this is easier for you to get information from 

marybottomley

Ok I will take look also I meant I suffer with epd and tinnitus 

dolfrog

marybottomley said:

Ok I will take look also I meant I suffer with epd and tinnitus 

Not too sure what epd is.
Misaphonia and Hyperacusis are both part of the Tinnitus Syndrome.
Misaphonia is the most recently to be identified in recent years.
You could have a look at the British Tinnitus Association web site which includes links to local support,
https://www.tinnitus.org.uk 
I hope this helps

Ami2301

Hi @marybottomley and I'm sorry to hear you are struggling. I have had hearing loss for over 4 years now and i still struggle with adapting to it. Hearing aids and amplifiers do not work for me, i'm waiting to be referred to a specialist hearing clinic to hopefully find something which will help.

I have Bilateral Sensorineural Hearing Loss and Tinnitus too (along with other conditions). If you need someone to talk to, i'm usually on here most nights

marybottomley

thankyou