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Assessment tomorrow - a few questions

anxiousbirdanxiousbird Member Posts: 77 Courageous
Hi all, I’ve got my telephone assessment tomorrow morning. I have DWP a call today to ask whether they have already received the additional evidence that I sent to add to my application, but they haven’t yet. So the assessor won’t have the new evidence tomorrow! 
The additional evidence is about getting referred to Secondary mental health care, chronic fatigue syndrome, health anxiety and vomit phobia and letter from CBT therapist. 
Is there any chance that the assessor will take my word for it when I describe my conditions in light of the additional evidence even though he doesn’t have access to them yet? Or am I looking at an MR now? 
Also, any advice on how best I can present my case given the lack of evidence the assessor will have tomorrow? 

Any help much appreciated. 
Tia 

Replies

  • woodbinewoodbine Member Posts: 2,895 Disability Gamechanger
    Afternoon @anxiousbird evidence isn't the be all and end all, at the end of the day PIP is all about how  your condition(s) affect your daily life and how they fit into the descriptors.
    The assessor will ask you a number of questions so they can build up a picture of your day to day life.
    I would take today to write down the points you want to make sure you get across.
    Just to add that people get successful outcomes having provided no evidence whatsoever.

    Good luck and let us know how it goes.
  • cupcake88cupcake88 Member Posts: 724 Pioneering
    Hi @anxiousbird best of luck with it , I get pip for My mental illnesses And I didn’t have loads of evidence only some . I know it’s such a worry I wish you luck and hopefully you have a quick decision my decision was very quick I got my back pay before my decision letter x 
  • janer1967janer1967 Community champion Posts: 7,305 Disability Gamechanger
    Hi there 

    First of all good luck for tomorrow 

    Try not to worry over the evidence not being with the assessor they are mainly concerned with going through what you have put in your form but you should also mention what is in the evidence where relevant 

    The DM will look over the evidence along with assessment report to make a decision 
  • cupcake88cupcake88 Member Posts: 724 Pioneering
    Do you have a mental health nurse as well or just therapy ? Are you under a mental health team ? Xx I wish you all the best with your therapy x 

    I’m waiting to do therapy my therapy had to be stopped as my mental health nurse said I wasn’t ready yet and would make me worst .

    i have heard really good things bout therapy x 

  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Thanks all for your helpful replies! I know it *should* be about how it’s affecting us daily but from my last (unsuccessful claim) I know that she marked me down for ‘no specialist input’ even though I had the letters attached, so I assumed the threshold for ‘professional evidence’ was quite high, and so this time I made an effort to gather relevant evidence. 

    @cupcake88 yes I remember you from my previous posts. It’s really good that you’re getting what you deserve! I’ve been on CBT but they have referred me to secondary care (still waiting for that to start- whatever it’s going to be) as I wasn’t really making progress with CBT even after two rounds of it. I really hope I do get a sympathetic (or is it empathetic 🤔) assessor. I’m a mess and I know I deserve pip, just hope that I’m able to get it all across in an hour! It’s so depressing having to put down all your issues at one place and analyse how you’re crippled because of those problems. I guess in day to day life we focus so much on getting by that we rarely get a chance to reflect how miserable it all is! :( 
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    One more question, does anybody have a list of descriptors/points for each activity? When I search online it seems to only show an older version (I’m assuming), as it only goes till activity 9 whereas the form I received had more activities for daily living and some of them I can’t find descriptors for. 
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    The form I received had 12 daily living activities and 2 mobility ones 
  • cupcake88cupcake88 Member Posts: 724 Pioneering
    If your pip isn’t successful then don’t give up  appeal and appeal . I know how nervous it makes you like your self I’m really not well mentally and the money has made such a big difference to my self as I’m not able to work . I’m wishing you all the best and I’m seriously hoping you get awarded pip xx
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
  • berry123berry123 Member Posts: 128 Courageous
    I had my assessment last week make sure you ask them to repeat question if you dont understand and take your time answering.  The assessor will ask you first about your health and recent changes just inform them.. @anxiousbird go through the form.  Best of luck for tomorrow xx
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    berry123 said:
    I had my assessment last week make sure you ask them to repeat question if you dont understand and take your time answering.  The assessor will ask you first about your health and recent changes just inform them.. @anxiousbird go through the form.  Best of luck for tomorrow xx
    Thanks a lot @berry123 Feeling so anxious. I just hope he gives me enough time to answer all the questions and ask me to fill the gaps if he doesn’t understand something fully, rather than him filling in the gaps himself later on. The assessment is quite early morning as well; don’t know whether I’m going to get any sleep at all 🙈
  • leeCalleeCal Member Posts: 3,006 Disability Gamechanger
    Good luck today, I hope all goes well for you @anxiousbird
  • berry123berry123 Member Posts: 128 Courageous
    @anxiousbird hope it goes well I had my assessment at 8am hlad it was over done with first thing.  Keep us updated xx
  • berry123berry123 Member Posts: 128 Courageous
  • OverlyAnxiousOverlyAnxious Member Posts: 1,143 Disability Gamechanger
    The form I received had 12 daily living activities and 2 mobility ones 
    The descriptors aren't the same as the questions...I made that same mistake when I filled out my form.

    The HCP decides which parts of each answer fit into the descriptors - so more than one descriptor can be covered within a single question.  Hope that makes sense!

    Good luck for today!  :)
  • berry123berry123 Member Posts: 128 Courageous
    @OverlyAnxious your right and not in the same order.  My assesor missed out 2 questions but it was coveted in my previous answers 
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Thanks all :) 
    just got done with the assessment, it was only 45 mins long and the assessor didn’t even go into too much detail. I had so much to tell him but the conversation was all very superficial (sort of). Don’t know what to expect, should probably start thinking about MR now. 
  • berry123berry123 Member Posts: 128 Courageous
    @anxiousbird best if luck just wait of the outcome of your assessment dont give up 
  • janer1967janer1967 Community champion Posts: 7,305 Disability Gamechanger
    Af least it's over now you can request copy of the report after approx 7 days to see what it recommends 
  • Adrian_ScopeAdrian_Scope Testing Team, Community Team Posts: 7,941 Scope community team
    Hi @anxiousbird. You can't read too much into the length or apparent detail of the assessment, so please don't let it play on your mind. 
    If you wait a week or so you can request a copy of the assessment report which will give an indication of what has been recommended (keep in mind the DM doesn't have to go with the report but usually does).

    Fingers crossed for you. 
    Senior Community Partner
    Scope

    If you have a few minutes to spare, we'd appreciate your feedback on our online community.
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Thanks all
    yes @Adrian_Scope I understand that we can’t judge it based on how the assessment went, I was just worried because he hadn’t even received my additional evidence from DWP and neither did he go into detail about the effects my illness has on my daily life. Will ask for the report soon :) 
  • cupcake88cupcake88 Member Posts: 724 Pioneering
    @anxiousbird did you mention bout your cbt therapy you have comming up and medications that your on ? You will get a text when your report is back so you can request the report but I got my back payment before I got my letter and report and with the post the way it is at the moment might take longer but you can always call pip in a few weeks to see what the decision is x 
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Hi @cupcake88
    I can’t take medication anymore because of a fear of medicines now. I did mention about my CBT and secondary care services but he seemed quite confused about it (he said he couldn’t see that in my evidence and I kept telling him that the most recent bundle of evidence that I’ve sent to DWP hasn’t yet been received by him as it hasn’t been scanned into their system yet). For some reason every time I mentioned that I know he hasn’t received my extra evidence that I recently sent, he kept saying ‘no I have your evidence’. Kept confusing the evidence that I sent with my pip form with the extra evidence I’ve recently sent in. 
    Ah well, will have to wait and see now. Glad the assessment is over at least 😋
  • OverlyAnxiousOverlyAnxious Member Posts: 1,143 Disability Gamechanger

    I can’t take medication anymore because of a fear of medicines now.
    Not at all related to PIP but does your GP understand that?  Mine can't seem to get his head around it!  :|

    I'm struggling with near constant nausea now (recent addition over the last couple of years) which is horrible for someone with OCD & emetophobia...yet my GP just want's to fill me with SSRIs...which are known for causing nausea. :/

  • anxiousbirdanxiousbird Member Posts: 77 Courageous

    I can’t take medication anymore because of a fear of medicines now.
    Not at all related to PIP but does your GP understand that?  Mine can't seem to get his head around it!  :|

    I'm struggling with near constant nausea now (recent addition over the last couple of years) which is horrible for someone with OCD & emetophobia...yet my GP just want's to fill me with SSRIs...which are known for causing nausea. :/

    No not really, I just stopped telling them that I don’t want medicines or that I don’t use them anymore and stopped asking for medicines as well. Therapist knows. I’ve got vomit phobia as well so I understand how you must feel. 
    Are the SSRIs helping you at all? 
  • OverlyAnxiousOverlyAnxious Member Posts: 1,143 Disability Gamechanger
    edited February 24

    Are the SSRIs helping you at all? 
    No...I haven't managed to get any in so far due to the fear of side effects!  :D   I haven't been able to take any form of medication for nearly 20 years but only started trying to deal with Doctors again 5 years ago.  I've never found a GP that understands so far.  I had been managing the anxiety reasonably well until 2018 when several physical issues got worse, which then cause more anxiety and it spirals.  I'm really not convinced the nausea is linked to anxiety (for 90% of the time) though.  I'm not able to deal with therapists either (tried 3 CBT 3 times but only managed one or two sessions each time).  And obviously no chance of any physical medical examinations at hospital.  I'm clutching at straws now, hoping that once I've found a more suitable property to move to, the overall anxiety will drop, and if it is that causing the digestive issues then hopefully they'll drop as well.  If not, then I'm not sure what the next step is...the SSRIs could have catastrophic consequences for me so I'd have to be really desperate to risk them now.
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Aww I hope things do get better for you @OverlyAnxious . 😘 I can relate so much with you, although my problems only started about 8 years ago. 
    Having a good and understanding GP is such a blessing! I used to have a very nice GP, but then I moved to another city and unfortunately up till now I haven’t found one that REALLY understands. 
    Once I even got a massive attack AT the GPs and I was in the GPs office barely able to breathe or open my eyes, my mum was crying looking at me like that but the GP was so indifferent, so heartless really that she kept asking ‘okay yea so why have you booked a appointment today how can I help you’ etc. Needless to say, never saw that GP again! 
  • Rick753Rick753 Member Posts: 2 Listener
    Ideally I'd say that you want to find out whether your GP is part of the practice, or salaried by them, or simply a temporary contractor. My GP, who is excellent, is a practice partner and thus has a vested interest in holding onto patients, treating them well and retaining them, which is good for their business, which is what many modern GP practices are - they set up on their own and sell their services to the local NHS Care commissioning group, so they don't wan't bad reviews.
    Good luck with your Pip claim.
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Thanks @Rick753 :) 
    How does one find out whether a particular GP is a partner? Can we just ask the receptionist or something? 
  • woodbinewoodbine Member Posts: 2,895 Disability Gamechanger
    I don't see any reason not to ask the receptionist.
  • Rick753Rick753 Member Posts: 2 Listener
    Well, in my case the surgery has a website, and all the partners are listed first, then the salaried GPs, then any temps (locums).
    So you could see if your GPs are online, I'd imagine most are these days.
    If you know anyone in the locality who is registered there you could ask if there are GPs noted for kindness, empathy, etc. There usually are, and they are usually well booked-up!
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Thanks both of you! That’s very helpful to know :) 
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Hi all, just an update that I’ve received a text just now to say that DWP has received my written report now. I’m calling now to request a copy of the report. Any chance the customer service agent will be able to look through the report and tell me whether there’s any recommendation for an award or do I just have to wait to the report in the post? 
  • anxiousbirdanxiousbird Member Posts: 77 Courageous
    Just going through my report from last time (when I got refused) and just realised the my assessor yesterday didn’t even ask anything about how many good or bad days I have and didn’t ask anything about dressing/undressing etc. At all! 🤭
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