Speech and language
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Rehab for dysphagia

TmumTmum Member Posts: 4 Listener
Hi i am looking for advice re any treatment program for dysphagia i need some rehab for my daughter. Who are the experts in this for children ? This dysphagia caused by stretching shock to cranial nerves follow operation.  We have a SALT but only seeing monthly. Thanks for any advice 

Replies

  • Sandy_123Sandy_123 Member Posts: 1,541 Pioneering
    Hi ya @Tmum welcome to the forum. I hope you find the support you need for your daughter, S.A. LT teams might be able to advise you, where to get help or see your daughters gp to get a  referral or specialist. 
  • TmumTmum Member Posts: 4 Listener
    Hi Sandy
    Thank you for your reply.
  • Richard_ScopeRichard_Scope Posts: 2,839

    Scope community team

    Hi @Tmum
    Once a month does seem to be very minimal in terms of rehabilitation. have you been given any kind of exercise regime to undertake with your daughter between visits? With Covid taking up funding and services, you may have to pay privately to increase the frequency of visits, unfortunately. The best centre that I know of is GOSH Dysphagia Centre for children. You can be referred by your G.P., your daughter will then be assessed by the team.
    Scope
    Specialist Information Officer - Cerebral Palsy

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  • TmumTmum Member Posts: 4 Listener
    edited March 23
    Hi @Richard_Scope thank you so much for the info. I did not know they had a dysphagia centre at GOSH . I will ask about it. Also will look into private speech and lang i have heatd of a electrical stimulation therapy but not sure if its available to children . Do you know any info about this does GOSH do it. ? Thanks 
  • Richard_ScopeRichard_Scope Posts: 2,839

    Scope community team

    Hi @Tmum
    I haven't heard of electrical stimulation therapy for dysphagia. I would hope that the people at GOSH would know about it but I couldn't see it on their web page.
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • TmumTmum Member Posts: 4 Listener
    edited March 26
    Hi @Richard_Scope I found about this therapy  when on a call with a private SALT therapist there are 2 companies doing this both American one called Vital Stim the other AMPCARE its called NMES or TNMES I not sure if this only offered to adults though. 
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