Confused about LCWRA — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.

Confused about LCWRA

C24 Member Posts: 1 Listener
edited April 2021 in Universal Credit (UC)

Previously I have had severe mental health difficulties since I was 13 (now 26). This year I was referred by my GP for an autism diagnosis due to how my traits affect me day to day and occupationally, although the wait times are currently between one and two years in my area. The GP said that they wouldn't refer me if they didn't think there was a good chance that I'd get a diagnosis, and if a diagnosis wasn't going to change anything for me as the waiting times are ridiculous right now.
My family have an extensive history of autism (2 first line family members plus 3 cousins). I have two children, my youngest being 2 so I'm automatically in the LCW group until he turns 3 in January. I've tried working 3 times since having my youngest, and each time I've nearly been hospitalised for my own protection due to sensory overload and the affect that that has on my mental health. My work history since I was 17 has always been rocky, I've never actually left after a notice period because I last 2-6 weeks before I can't cope anymore and flee the situation.
I spoke to a work coach today to discuss getting some help reporting my condition to UC and being assessed for LCWRA, as I'm unsure what to put in when it asks what conditions I have when I haven't formally been diagnosed with ASD. She basically told me to not bother as I don't have a diagnosis and I'm not expected to work until he's 3 anyway. She went on to say that even when he does turn 3 they'd "only" expect me to work 16 hours and 25 when he's 5. I couldn't even manage an 8 hour contract the last time I tried to work over Christmas, the number of hours isn't the issue - it's the scenario in general. She just told me to put a note on my journal to say that I've been referred but not to actually report a change of circumstances. 
 I've put a claim in for PIP, just got the forms today so hopefully sending them and any evidence off next week. But I don't know what's right or wrong for LCWRA, the idea of filling it out incorrectly is stressing me out. I really struggle talking on the phone and, whilst I'm marginally better talking in person, with COVID it's not easy to get face to face support for these things. Leaving a message on the journal didn't help, that's what resulted in the phone call above which left me really fobbed off. 
Any guidance would be much appreciated as it seems ridiculous that I might have to wait up to 2 years for a diagnosis so I can start getting some help with day to day life. 


  • janer1967
    janer1967 Member Posts: 16,336 Disability Gamechanger
    Hi there 

    The condition you report has to be backed up by a fit note so you should put whatever the doctor put on your note as the condition 

    You dont have to give much detail when you report it 

    Once you get the uc50 forms that's when to put the detail . 

    It usnt about a diagnosis but about your coability to work and how your condition affects you in a work environment 


Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?

Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.