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emmer79
Community member Posts: 4 Listener
Hey there, my name is Emma, I have joined this forum for help and advice on tethered cords!
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I will also add to my last post, is this a forum for mostly adult SB sufferers? Is there a chat or section with children with SB?
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Hi and welcome
Feel free to join in or ask any questions
I don't have any advice to give just wanted to say hi
Have a look around you may find some useful info in pur specialist sections -
Thank you very much ??
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Hi @emmer79 - & welcome to this friendly & supportive community. This forum is for anyone with a disabilty (or with a disabled relative, etc). I have an interest in Tethered Cord Syndrome, as it can occur with one of our family's problems (Chiari 1 Malformation). Last year I attended a virtual conference on Chiari 1 Malformation, & there was a lecture about Tethered Cord which you may find of interest.With acknowledgement to the American Syringomelia & Chiari Alliance Project, & their recent virtual conference July 2020. Please see: https://www.youtube.com/watch?time_continue=5&v=pcXD0iFqPQs&feature=emb_titleThe following is the main charity in the UK for those with SB. Please see: https://www.shinecharity.org.uk/Just to add, we have several members with SB. Please let us know if you have any questions, or if we may help in any way. Thank you for joining us all.
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That is so helpful thank you..will have a look for sure
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A big welcome to the community from me too @emmer79 I think your questions have been answered above, but please do let us know if you have any further queries.
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