Hi I'm mlkins! I've been living with pain from crushed discs for many years. Looking for support

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mlkins
mlkins Online Community Member Posts: 7 Listener
edited May 2021 in Neurological impairments and pain
I have suffered for many years now with my spine I have crushed discs and 2 discs out 1 in my neck and 1 at the bottom of my spine waiting for surgery. Came here for a little support x

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  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community 

    Sorry to hear about your pain 

    It is a very supportive forum feel free to join in or ask any questions 
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    Hi @mlkins and a warm welcome to our community from me.  

    I'm sorry to hear about the problems you've been experiencing with your spine and neck, that sounds really painful :(  Do you have a date for your surgery yet?  Also, how are you coping emotionally and practically?  Sorry for all the questions but I just want to check you're getting all the support you need.

    We've love to be there for you as you go through this, so please do lean on us if you need anyone to talk to.  If you want to get to know our members a little better, then the coffee lounge is a good place for a light-hearted natter with them.  While you might find our different categories interesting to browse through too, and maybe the Physical impairments and mobility issues category in which other people with similar conditions have shared their stories.  

    I hope you're having a nice Wednesday.  Speak soon and take care.
  • mlkins
    mlkins Online Community Member Posts: 7 Listener
    Thank u for such a warming welcome .I'm finding things very hard at the moment pain is through the roof taking all the medication I can .emotionally very upset as been like this now for 10 years and things just don't get better .x
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,714 Championing
    @mlkins Aww blimey, I can understand after 10 years how you are feeling upset.  Sending you a big virtual hug from us  <3  Is your GP aware of how it's impacting you emotionally?  Also, have you ever been referred to a pain clinic?  

    I know it's not easy living with chronic pain and you have our full empathy.  Does anything help ease it at all?  This NHS webpage has tips on how to reduce pain so maybe give them a little look at for different ideas too.  

    I hope your op date isn't too far off and please let us know how you get on.
  • mlkins
    mlkins Online Community Member Posts: 7 Listener
    Yes my doctors knows but all they want to do is send me to a and e which last time I sat there for 11 hrs so no not keen on that I'm on morphine patch but been on the medication for so long does it work ? I've thought about joga but can't put any weight on them .I hope they hurry up and operate I've some hope that will help sorry for the long message x
  • chiarieds
    chiarieds Online Community Member Posts: 17,107 Championing
    Hi @mlkins - & welcome to this friendly & supportive community.  :)  I've been there with morphine patches, & gradually came off them as I found they were no longer reducing my pain. I hope it's not too long until you hear about your surgery.
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    edited May 2021
    Welcome to the community @mlkins :) There's no need to apologise, you're more than welcome to vent and share your experiences here. 

    I too hope that you hear about your surgery soon. 

    It's understandable you wouldn't feel up to doing full-on yoga. Have you considered trying an adapted form of yoga, such as chair yoga? Would that be a little more manageable?

    I've moved your post into our category for discussions relating to dealing with chronic pain, and renamed your post slightly, so that other members can find it more easily.
  • Lisatho11987777
    Lisatho11987777 Scope Member Posts: 5,874 Championing
    Hi and welcome to the community sorry to hear about the pain your in I went to pain management which worked for me 
  • Sandy_123
    Sandy_123 Scope Member Posts: 63,123 Championing
    Hi @mlkins I sympathise with the pain you must be in,  hopefully your op won't be too long
  • Caz_Alumni
    Caz_Alumni Scope alumni Posts: 621 Empowering
    edited May 2021
    Welcome along @mlkins. It's lovely to have you with us :)

    So sorry to hear about your difficulties. Have you had a read of some of our members suggestions? Would any of those work for you in trying to relieve your pain, do you think? At least while you're waiting to hear back about your operation, maybe? 

    Hope you're not waiting too long. And do pop back to let us know how you're getting on in the meantime. :)

  • mlkins
    mlkins Online Community Member Posts: 7 Listener
    I have thought about chair yoga wasn't sure if I should wait till I've spoken with hospital now .as I do have other conditions I have ra as well as degenerative disc disease and narrowing of exiting on my nerves or something I get confused ? and now my feet and legs are hard work as I've done my heels in the muscle at the back which might have to be operated on that's my moan done .thank u everyone for ur lovely welcome x
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    It could be worth waiting to check about the chair yoga just in case @mlkins, as you wouldn't want to make anything worse as you say. Could you perhaps speak to your GP about that? 

    How have you been getting on? 
  • mlkins
    mlkins Online Community Member Posts: 7 Listener
    Still in alot of discomfort but dealing with it thought about ringing the hospital this just to see where I am on the list .thanks for asking x
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    It could be worth ringing @mlkins. How long have you been waiting? 

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