Remaining politically neutral during General Election 2024


Under guidance from the Electoral Commission and Charity Commission, it's important that Scope remains politically neutral during General Elections.

While we understand that this period will see many passionate discussions and do not want to discourage open discussion, we cannot allow discussions which are purely intended to influence voting.

As ever, please make sure that your comments remain respectful of other people's opinions and keep to our online community house rules.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

PIP claim refused

Options
LeeA380
LeeA380 Community member Posts: 59 Connected
Found out today via phone call that I was refused PIP for a first time claim. I was awarded 6pts on the daily living, and only 4 points on the mobility.

I think part of this problem came because I ticked 12b "can walk up to 200m", yet on my telephone call I was adamant that it was actually 12d "between 20-50m aided". This contradiction has messed things up for me I think.

However, for the Daily Living component, I do not know how I only got 6 points. I need to await my decision letter to see exactly how, but having neuro problems in my lower back (L3 disc bulge and bone marrow oedema among other problems) has rendered my left leg unusable for 10 months now.

I need crutches for everything I do, including prepare food, go to the toilet, shower, and getting undressed etc. That there is at least 8 points, which would qualify me for the standard award (I was not expecting the larger award). For my showering needs, I cannot even use crutches in the shower, as it is a slip hazard, so I have invested in some knee pads and I crawl in and out of the shower on my knees like some kind of animal - for 10 months now! Because of this I have also developed a meniscus tear in my knee!

I recently obtained my health records from the NHS which I can use as further evidence when I go to the mandatory reconsideration. But i am so angry and upset right now.

Comments

  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
    Options
    Hi and welcome 

    Sorry you didn't get an award as you said wait till you get the letter and take to Mr 

    Have you had a care needs assessment who can advise on suitable aids and adaptions to help you.  Maybe a bath or shower seat that can help you get in and sit in the shower would help and a perching stool for the kitchen 

    You can also use the report for evidence for pip 

    You can self refer on the gov website 

    Go through your report and for each descriptor give real examples if what happens when you try and do each task for the mr 
  • LeeA380
    LeeA380 Community member Posts: 59 Connected
    Options
    janer1967 said:


    You can self refer on the gov website 

    Hi Janer1967. 

    Refer myself for what exactly?
  • MarkM88
    MarkM88 Community member Posts: 3,127 Connected
    Options
    LeeA380 said:
    janer1967 said:


    You can self refer on the gov website 

    Hi Janer1967. 

    Refer myself for what exactly?
    Care needs assessment. 
  • chiarieds
    chiarieds Community member Posts: 16,162 Disability Gamechanger
    Options
    Hi @LeeA380 - & welcome to the community. :)  I'm sorry about the problems with your PIP, & hope you're able to better explain things with your Mandatory Reconsideration.
    Here's a link to the NHS info on a needs assessment. It also contains a link to the Gov. UK website that Jane mentions. Please see: https://www.nhs.uk/conditions/social-care-and-support-guide/help-from-social-services-and-charities/getting-a-needs-assessment/

  • wilko
    wilko Community member Posts: 2,458 Disability Gamechanger
    Options
    @LeeA380, reading your post I assume you have a copy of your assessment report as you know what points you have scored. If you have your report you can gather extra information evidence to submit an MR if you wish and think you have a good chance of getting a PIP award.
  • LeeA380
    LeeA380 Community member Posts: 59 Connected
    Options
    wilko said:
    @LeeA380, reading your post I assume you have a copy of your assessment report as you know what points you have scored. If you have your report you can gather extra information evidence to submit an MR if you wish and think you have a good chance of getting a PIP award.
    No, i phoned up and asked what I had to do to send more evidence in... the woman said that a decision had already been made (only 2 weeks since phone assessment) and did I want to hear the results. She explained to me over the phone what my scores were. However, I am now awaiting the letter which said she said could take up to 10 days to arrive.

    I will get on to the MR immediately.
  • laurakins
    laurakins Community member Posts: 3 Listener
    Options
    I scored the same. I need prompting for meds, help in and out of bath by fiance and help with shoes and socks so I should have scored 10 points not 6 really. But you need 8 so I was not awarded. I have collected some referrals, appt letters, gp letter, statements from family to help me as I should get standard living. All I can say is that you take it further and provide more evidence like I am doing. I aim to send it all next week once I have copied it all just in case it is lost. I need another 2 to get it but I should get 10 with my issues. Good luck!
  • MarkM88
    MarkM88 Community member Posts: 3,127 Connected
    edited July 2021
    Options
    laurakins said:
     I have collected some referrals, appt letters, gp letter, statements from family to help me 
    Referral letters and appointment letters are not worth sending, it tells them nothing. The same really with the GP report, they don’t sit with you day in day after to know how you are impacted, they only know what you tell them. 

    It’s better to give 2 real world examples for each descriptor and go into depth about what happens when you attempt that activity, what are the consequences when you do attempt it and what the implications are, ensuring to also include whether you can do this safely, reliably and to a satisfactory level. 
Complete our feedback form and tell us how we can make the community better.

Do you need advice on your energy costs?


Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.