How do people manage — Scope | Disability forum
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How do people manage

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littleacorn
littleacorn Community member Posts: 369 Pioneering
As a power wheelchair user how do people manage to do all their daily chores around the house. Cleaning floor, benches, cupboard, changing bed, washing etc. My house is so dirty and is driving me mad infact depressed. I cant aford to pay someone to do it out of my benefit.

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  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi there 

    I can manage lots of things myself but must admit I have my son to help 

    My tips are have no clutter   tidy away ad you go   use bed spread rather than quilt 

    Have you had a care needs assessment you may find you would qualify for some care 

    Refer yourself via gov website 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
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    Hi @littleacorn

    Sorry to read you're struggling with this, do you have support from any friends or family members with those tasks? As suggested by Jane, you might want to refer yourself for a needs assessment through your local authority, to see if any care can be put in place for you. 


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  • littleacorn
    littleacorn Community member Posts: 369 Pioneering
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    I know about needs assesments but will they take my PIP money into consideration as Im on higher rate for both and therefor expect me to pay someone out of this?
  • atlas47
    atlas47 Community member Posts: 238 Pioneering
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    Hi @littleacorn

    PIP is a none means test benefit and will not be counted. So please seek an assessment, please note your LA has a statutory duty to undertake this.

    Keep us informed.
  • pollyanna1052
    pollyanna1052 Community member Posts: 2,032 Disability Gamechanger
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    atlas47 said:
    Hi @littleacorn

    PIP is a none means test benefit and will not be counted. So please seek an assessment, please note your LA has a statutory duty to undertake this.

    Keep us informed.

    When I was put on PIP from DLA, my PIP care component was included in the means test...even though I have no savings and I have to pay £40 a week towards my care.
  • atlas47
    atlas47 Community member Posts: 238 Pioneering
    edited June 2021
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    Hi @littlecorn

    Just to qualify further.

    PIP is not means tested and cannot be taken off you for care costs.

    What the LA can do is undertake a financial assessment, but prior to this assessment, they have to conduct  a Disability Related Expenditure assessment.

    That enables you to detail the extra costs your disability, other than those of an able bodied person.

    An example would be your powered wheel chair, the cost of purchase/lease, electricity, repairs and insurance, I would think that would be £40/45 per week.

    You then go through all other expenditures, as a result of your disabilities and as a result the LA, cannot deduct your PIP care component.

    @pollyanna1052
    Did your LA conduct a DRE, before they charged you the £40 per week?

    Hope this helps.
  • littleacorn
    littleacorn Community member Posts: 369 Pioneering
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    Are there any guidelines tips etc of how to complete/include in a disability related expenditure assessment. I assume this is conducted by social care but what should I include when talking to them. I know power chair related expenses is mentioned @pollyanna1052 above but what else?
  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    There is lots of info on the Internet regarding this If you do a Google search 

    Better than explaining on here 
  • chiarieds
    chiarieds Community member Posts: 16,127 Disability Gamechanger
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  • Nashville
    Nashville Community member Posts: 18 Connected
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    I have just hired a power chair for my friend.  It is £80 weekly.  I completed a form declaring all the activities my friend was unable to do for himself.  Thinking of a typical day it was quite a long list.  Perhaps it is worth making notes for a week and assessing each of your activities as easy, some help needed, impossible for me - need to sub contract.  Hoovering and cleaning the floor would go on the sub contract list but switching tv on on the easy list etc.

    just a thought.

    nashville
  • littleacorn
    littleacorn Community member Posts: 369 Pioneering
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    Thanks for all the information. Alot of research and planning is on the cards for me in the next few days before I contact social care for a needs assessment.

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